Month: October 2018

Mental Illness Takes Over Your Life. You Can Take It Back

Sixteen years ago I made a serious mistake. I had been on a dose of depekane, a mood stabilizer and it was working well for me. At some point in my simple existence of renting movies, drinking coffee and smoking cigarettes I decided that I could get along just fine with half the dose of my depekane. I did this without consulting any doctor, it just seemed like a good idea. Gradually over the next few months I slowly went insane. It took a six month stay in the hospital and a number of years of recovery to get myself back to that level of mental fitness I had enjoyed for some time.

I was a little alarmed today to see that there are forums on Facebook and other places where people write in and talk about their experiences with different psychiatric medications. Of course, this sort of thing has its place, especially in the US where health care is extremely expensive, but I honestly don’t think it is 100% positive that people can write what they took for their problems and suggest the same drugs to others. Psychiatrists are trained medical doctors that have specialized in the human brain. Most of the time they don’t treat patients all by themselves, they have a team which may include nurses, occupational therapists, parents of younger patients and on and on.

One of the big problems that happened to me during my last (and I hope final) stay in the hospital was that somehow I started to forget that I was sick. When this happens to me, I end up suffering from all kinds of delusional thinking. It often starts with me believing there are hidden millions out there somewhere that I just have to step up to and claim. Another is that the key to all this wealth rests with a woman I used to have a crush on in middle school/junior high who I haven’t even spoken to in 28 years.

Sometimes the potential reward of these ‘delusional prizes’ seems to be so much that I let myself slip into the belief that they are true. Most of the time though, I have some sanity left over and that is enough for me to seek help, seek a way to quiet the dialogue in my head.

One kind of sad thing I remember was being 19 and being admitted into the hospital. I thought the world was against me, everyone but the young Jamaican clothing designer and fashion model I had become close with during a two-month stay there. I kept trying to tell people that it was the constant pressure of living with an alcoholic parent that put me in there. Of course, it wasn’t true. The part about fighting with my Dad was–but it had very little to do with my illness. It likely did contribute to the pressure I was under, but my Dad had been pretty reasonable and had let me stay at his house while he tried to find better housing for me.

What happened though, while I was in the hospital, was that I kept trying to blame my mental illness on the stressful home life I had, and one time I even told them if they were going to keep me in that place indefinitely I wanted to have ECT or electro-convulsive-therapy. At the time, as I am now, I have an incredibly detailed memory and the smallest things form these chains of thoughts that make me end up feeling like garbage. I had hoped the ECT would have helped with that, but it was a lot more likely that it would only have damaged my brain so badly that I would never have been able to write the way I do now. I ended up cancelling the ECT the morning I was supposed to get it.

So, regardless, by finding a Lawyer who wanted to fight for me, and winning favour of the judge in my competency hearing, I was allowed to go home. Or allowed to find a home, find furniture and pay for all the little things I needed to pay for.

For three months things didn’t go all that bad. My sister will tell you though that my mental health never went through any improvement at that time. I have vivid memories of hearing my name on the radio and of different types of thoughts giving me strange ideas. One of the things I did in that apartment was sit down and watch a class on drawing on PBS for quite a few days in a row. It was kind of fun to think that no one could disturb me. I even tried to work a little for a temp agency, but there was only so much of that I could handle. I don’t know why, but it seems when you work a non-union job the other workers are much more likely to grumble and whine and dislike you. I ended up working in a couple of factories, a chemical plant and a few other places. Then I found the number my friend had written down for me and everything changed.

It was just a little scrap of paper, it didn’t even have my friend’s real number on it, it had his sister’s number. He had given it to me just before I left and told me I could call him for anything Seeing as how (in a small way, mostly because of isolation) Edmonton seemed to really suck and Vancouver seemed to be so amazing, I saw this as a sign from above that my destiny lay on the coast, not in oil town. I called up my friend and almost right away he invited me to come out.

A lot of things happened in that time. I would suggest those interested should buy a copy of my book, “Through the Withering Storm” which takes a much more comprehensive take on the story than I can ever give. The way it all ended up was that I was abandoned by my travelling companion right in his little home city, 8,000 miles from home, with no money or credit card. It didn’t take long for me to realize I had been taken, and I stuck out my thumb and limped back north. How I survived it I really don’t know.

So many may be curious: ‘How do I take back what I lost from mental illness?’ The first step is to find the medication(s) that work for you, that have the least possible side effects. This is. good time to get involved in your own care, a great time to research your illness (if you can get your Doctor to tell you what it is) and study up on what works for others. Then, you just have to trust your psychiatrist and see him/her as often as possible, with notes you have kept about how the medication seems to have affected you.

I did just want to mention though that you need to be very honest with your treatment team, especially your doctor. When I first went into the hospital I had severe delusional thinking but was treated and released in just a couple of weeks. I was just gone for two days and I had spent a ton of money, gotten myself drunk, and basically dealt with my problems in the most childish way I could. All that mattered at that age was looking good and meeting members of the opposite sex so you could use them and then hurt them and get rid of them before they did it to you. I honestly believe it was good advice that once you have a diagnosis of a mental health issue you should never touch liquor again. For me it has been five years since I indulged and it actually feels so great.

Regardless my good readers, I appreciate all the support you give me. Please feel free to email me with any questions, or like and share this blog so I know which posts you more want to hear. And if anyone speaks Danish, I could really use some help doing my dad’s pension plan income tax. Should you want to learn more of my story, I have written two books, one being “Through the Withering Storm” and another “Inching Back to Sane” these books can be found on amazon.com, can be ordered through me using the contact information in this website, and I would love to meet anyone who read through both books. Good day dear readers!

Leif Gregersen

Mental Health and Addiction Issues the Homeless Face Daily

The streets of Edmonton, where I live can be cold and unfriendly. Many people fall into a trap of  being struck down by mental or physical illness, then addictions and eventually homelessness. You see it a lot where I live, makeshift tents with a shopping cart full of garbage nearby. Long line-ups at the soup kitchens and shelters. When oil was at a peak, people came from all over wanting to take part in the prosperity, the huge amounts of money to be made in the oilfields and in Edmonton in some of the numerous supporting industries from plastics to catering. It is almost sickening to think of what all the fossil fuels are doing to our once pristine and beautiful country, yet fracking and pipelines continue. When I was in eleventh grade, a friend was trying to encourage me to get a job in the oilfields. My ambition then was to be a lawyer, I found his idea almost laughable now, especially since he went on to become an alcoholic working under the table so he didn’t have to pay child support. When you take a long look at all the big money jobs in the oilfields, it just doesn’t seem worth the real price in loss of quality of life and many other factors. I know of so many dreamers who became homeless, addicted, mentally ill. A lot of organizations have tried to fill in the gaps left when people have nowhere else to go. From New Year’s Eve 2001 to the present, I have been living in supportive housing and despite the books I’ve written, the work I’ve done, the money I’ve made, I really don’t think I could have done any of it without living in places that supported me through my difficulties with bipolar and schizoaffective disorder.

When I last got out of the hospital, my life was destroyed. I had lost control of any finances, I was heavily medicated, and virtually unemployable. A long-term group home was found for me and I was able to recover almost completely. I still have troubles with sleep and stress, I still have times when I question my own existence or allow myself to get angry over things I can’t control. But none of those things can destroy me anymore, I have been allowed to grow new skin over my wounds.

Living in a group home had a number of advantages for me. I lived in a house with three other people, and though there were arguments and fights, and even people who did horrible and disgusting things, the needed stability was there. One time I was in a house with a barely functioning, overbearing bully who kept trying to order me around and pick a fight with me. I had to deal with him by calling the police one night and when I talked to them I didn’t have a chance to mention that he is in the habit of picking fights, losing them badly and then going to an organization called ‘victim’s services’ where he is given money in exchange for proof of his injuries. Another roommate in the same house once called the police and confronted me because I had woken up late for work and took two slices of a cold pizza he had left out in the kitchen because he had put it in the oven and was so drunk he forgot about it.

The thing though, was that when you live with others who suffer from a mental illness, the stigma and guilt are greatly reduced, and provided you are on the medication you need, it is so much easier to function, so much easier to heal. In the group home I lived in for 15 years, medication was given out each day. Adherence to all appointments was necessary. I had the benefit of having my dad come and take me for a walk in the park also which was extremely healing. There were a lot of difficult times with people who lived in the group home. There was one guy who believed that he could legally play his music as loud as he wanted as long as he turned it down a little after 11:00pm. I dealt with it by simply going to the basement and shutting off the breaker for his room, leaving him in silence and darkness. Then the management passed a rule that we weren’t allowed to touch the breakers. Soon, my roommate was playing his music again and I shut him down once more from the breaker switches and then plead my case to a higher authority. The same guy had a habit of coming home from work and turning up the heat as far as it would go, then taking off his shirt in the living room and laying down to watch TV. That was around the time I took up the habit of hiding the remote. Then, when he found it, I would insist he give it back to me as it was legally mine, then when I got it back I would turn the TV off. I had to find ways to amuse myself somehow.

It was an eye-opening experience to live there. For perhaps the first time in my life I could simply exist. I didn’t need to be some wealthy young entrepreneur, I didn’t need to be an A+ honour student on his way to Oxford, I just had to exist, take my medication, and hopefully not kill any roommates. I found out that housing like this, which is in extreme demand these days, costs about 1/4 of what a hospital bed costs the health care system. I have also heard information about how homeless people, job or not, cost society a great deal as well. I can see why because, to use one example, a shelter needs a lot of resources. They need food, staff, a constant inflow of donations of money, clothing, heat, security. I worked at a drop-in centre that didn’t even have any beds for homeless people and it seemed they had nine paid staff or volunteers supporting, educating, counselling, and even motivating the many people who relied on them. I guess I just wanted to say that in many places in North America, cold weather, extreme in some places is coming fast. Consider gathering up unneeded items, especially things like hoodies, toques, gloves, scarves, and finding a charity that would be extremely grateful to be able to distribute them for you. Something I have seen happen a lot is that people will put warm clothing items onto a tree or fence with a note saying that anyone who needs to warm up can take the item. Excess household items like books and furniture are needed at many thrift shops that support worthwhile charities. Consider also volunteering your time (if a place exists near you) with a schizophrenia society office, or finding ways to help integrate disadvantaged people into the greater community. This time of year is ideal for looking for ways to give back as many students get a Christmas break, and most charities need volunteers at Christmas, which they recruit in October and November.

Sadly though, all of these great ideas doesn’t change the fact that a lot of people, whether they read this blog or not, suffer themselves from a mental illness and don’t have the housing or the support or even the medical attention they need, and many of them are all alone in this world. I can’t imagine what things may have been like if I didn’t have my dad and my sister to advocate for me last time I was ill. To people in this situation, I just pray that they can plant a seed of hope deep inside of their minds. Just enough so that they can get to a clinic and find a way to get the assistance of a psychiatrist, find a way to get their medications. I know that in the US it is much harder to get by as a poor person, but I have also noticed from my own experience that once people see you are trying to take responsibility for yourself, trying to improve your own life so you can perhaps one day help others, they are more than willing to support you in your efforts to recover. One thing I would say is that there are opportunities to dig yourself out. There are things like newspapers that homeless people sell by donation, and if these don’t exist, approach your library and get them to help you put together a booklet of writing about people who are struggling in so many ways. Charge a buck or two and use the money for the essential things the group needs.

I wish I could keep writing. I also wish I had all the answers. But the sad fact is, each person who is ill, each person who is addicted or homeless, needs to find their own way. I found mine with the help of people who cared and loved me back to sanity. I wish this for all of you.

Do You Have Schizophrenia, Depression or Bipolar? Sadness and Loneliness Could Be Deadly To You

When people are struck down with mental illness, a lot o things are taken away. Some of them are permanent, and others you slowly get back over time as I discuss in my book, “Inching Back to Sane.” You could be inside a hospital and temporarily lose your freedom. You may lose the ability to be able to speak up for yourself and not be treated like a child. Perhaps the worst part about it is that you will lose friends and family members outside of the hospital setting, and it is extremely important to note even some loved ones will turn their back on you. No matter how hard it may seem, these are the times when you need to reach out to others more, make more effort to sustain and build relationships (not romantic ones). This is the time when you need others more than ever it is also a good time to practice self-care. I recall during this stage in my recovery that it was very important to have time to myself, to go for walks, to stay up late reading. This is also the time when I sat down and started to get serious about my first book, “Through the Withering Storm” writing while in a recovery program was difficult, but now so many people read that book and draw inspiration from it.

Studies have shown that approximately 1% of the population suffers from Schizophrenia. I don’t know how to take that figure because, from personal experience, delusions and hallucinations don’t always get reported. They get denied and buried, and the stigma attached to mental illness is the reason. No one wants to admit they have potentially embarrassing lapses in their concept of reality, so there could very well be more. I do know other illnesses, such as Bipolar, Depression, OCD, and others can lie dormant for years and come up at the worst possible times. It doesn’t help that mental illness can be accelerated by drugs most people here think are harmless like pot, mushrooms, hash, etc.

But let’s look at that 1% idea first, as this is something I have researched in my work with mental health. In Canada last I heard, there are around 33,000,000 people. This is an incredibly small number if you consider that we are larger than China. But, of those thirty-three million, at 1%, we would be looking at 330,000 people with schizophrenia so severe it greatly effects the economy and the people who want to do this type of work that helps the very young., (you are not alone!) Of those people, 10% will eventually die by suicide. This is not a figure of how many people are weak enough to give in, or how many people never had the fortitude to live their lives. This is 33,000 people who have an illness so severe that they feel dying is the only way out. Who is to blame? It seems that everyone shares blame a little. I work for the Schizophrenia Society in Edmonton and I have been made aware of some of the prejudiced thinking people have towards those with a mental illness. Yesterday I went to get some frozen fruit from my freezer to make a smoothie. Inside was a package of “mango mania” frozen mango chunks. Why did they have to put ‘mania’ on it? Thinking of times when I suffered from mania, or elevated moods that are almost totally uncontrollable, and have at times caused me to want to die just to make the merry-go-round on steroids stop spinning, the idea that they could use such a horrible thing to advertise a product made me sick.

But it’s not just there-it’s everywhere. A little while ago I thumbed through an old Archie Comic-possibly the most politically correct, wholesome-type comic they have for sale. On just about every page there was some prejudiced statement about mental illness. Jughead would have to be crazy for not eating 20 hamburgers, Reggie was nuts to think he could get away with talking to Big Moose’s girl Midge. Then you look at the TV. Shows about the most depraved, perverted criminals are displayed as having schizophrenia or bipolar. Some reason to shuffle off some of the real problems of society, like the constant glorification of violence and extremely outdated attitudes towards women. Stigma like this destroys lives and will continue on until people take a stand for those who simply suffer from illnesses that can be treated and controlled with medication and other care.

When you leave your community and are sent to a place that supposedly helps you deal with a mental illness, all too often you are no longer a part of that community. Shame, stigma, the isolation that many people with illnesses force on themselves will drive you out eventually–unless you have a supportive family and friends. These are such essential aspects of getting better. My problem was that when I first went into the hospital I was only 18 and just about every one of my friends did very little other than get together and drink beer until they were incapacitated. A harsh reality is that beer, this seemingly innocent social lubricant is just about like poison to anyone who is taking psychiatric medications. I learned at another time that once a person is put on psychiatric meds, they are supposed to quit drinking completely for the rest of their lives.

Quitting drinking was one thing. Being a part of a social group, having friends who didn’t drink were another. It has been very hard since that time when I first had a mental breakdown. There were times when I sold things pennies on the dollar just to have a few bucks in my pocket to buy a sandwich or a bag of chips as I hitch-hiked in near winter weather across the Rocky Mountains. I feel so lucky now. It was such a long process. My depression started at a very young age, I can recall it being a factor in my life before I was even ten. I was prone to crying spells and isolating myself even then. At the end of a weekend, I was often so upset at the idea of going back to school the next day I would literally cry myself to sleep. These depressive episodes went on and on through my teen years. The worst part of it was that I kept it all to myself. I had an inkling something was wrong. Most people didn’t seem to be in a cloud of self-loathing and depression. But I had no way to reach out for help. One thing I keep replaying in my head is talking to my mom about some of what I was going through and her offering to let me see her psychiatrist about these problems. This was my last chance, my last hope. I turned it down and within just a couple of months I ended up stark raving mad for want of a better term.

By miracles of modern psychiatry, when I did get very sick, it only took around a month in the hospital to get my brain operating the way it should (with medication) but I wasn’t ready to admit I needed the meds. Those were really dark times. I had a few close friends left, and I even have a couple of warm memories of doing things like working as a bouncer at a dance party, getting drunk out of my mind and feeling the bliss, the numbness, and the joy of no longer caring about everything.

One thing that my illness took away from me was my meek nature, my idea that everyone mattered, that each person was a human being like me. One night a friend came over and we got very drunk and decided to go play some basketball. For no reason at all, when we were on the court, I threw a basketball as hard as I could at a kid a couple of years younger than me. I look back now and see myself as some kind of animal. I just no longer cared. My school ‘career’ was ruined, all my credibility was ruined, kids were running around calling me psychopath and my reputation was ruined. It seemed I had so few options. I chose to join the military in hopes of finding an honourable way to die, but even those people didn’t want me. After a lot of problems with my dad, I cashed in everything I could, sold my motorcycle for $20, and put my thumb out and headed for the highway. It wasn’t all bad. I got to see the Rockies from a convertible. I experienced the many wonderful aspects of living in a coastal city. But I didn’t get into the military. Without my medication I slowly decayed until I was out of my mind again and returned home. From there I went through more treatment and when I got out all of my old school friends wanted nothing to do with me, aside from a few people who I would call just users and abusers. I was taking my medication, but there was no system in place to give me ongoing treatment. I didn’t even leave the house much. At that time I started to slip back into my delusional world. Movie stars were in love with me, millions of dollars was waiting for me just to claim for my own. Most of these delusions came in the form of distorted memories on the radio. I sat and I watched TV and let time slip by and soon I had been there three months and had accomplished nothing but gaining a bunch of weight and missing the life I had in Vancouver.

Over the next years, I was often left with a choice: associate with unsavoury people and have someone to talk to, or not have anything to do with these people and slip further and further into isolation and depression. There were many mishaps, and they didn’t really come to an end until my parents intervened and convinced my doctors to add an anti-depressant to the medications I was taking. This really made a huge difference. I was able to get refreshing sleep. I was able to sit down and read. Not long after I got a job but the stress soon proved nearly impossible to deal with and I quit. But I was writing.

For a while I went to church, I did make some friends, but nothing like the friendships I had with my cadet buddies. My anti-depressant somehow stopped working and I ended up going on Prozac. What a difference that made in my life. It helped with my moods, it helped control my horrible nightmares, and it also helped a little with my social anxiety. A few years later though, I went through a very difficult time in my life. Basically I learned that I would never get another chance to be friends with a young woman I thought the world of. Instead of having any means to deal with my feelings, I once again isolated myself. Perhaps I was trying to punish myself. But I stopped taking my Prozac as well, and a few months later took a very near deadly dose of painkillers. The feelings of rejection and loneliness were just too much. But people still cared. My parents, after all I had put them through happened to come by and when I didn’t answer the door, my dad slipped a $20 bill under it. If he hadn’t done that I would have had no way to get a cab to the hospital and I likely would not be here writing this.

This blog has actually gone on for quite a while and I haven’t been 100% on topic. I think I will follow up on this topic in the next blog, so stay tuned. For now, I hope my readers, whether they have a mental illness or not to practise self-care. Take a mental health day off of everything. On your death bed you will never wish you had spent less time with people you cared about and more time working. If you smoke, quit and put the extra money it gives you into taking a relaxing and renewing vacation. My trips to Hawaii and London, England have proved to make me happier, more fulfilled, and even simply more talkative with friends about the things I have seen and done. If you experience depression, look into medication options, but do your research. Talk to a doctor you trust, talk to a pharmacist you trust. And when you are put on a medication, don’t stop taking it because of symptoms you can handle. Some symptoms may be too much, but it could be detrimental to just stop a medication. Do everything you can to hold out and wait for the good effects to come about and for your body to adjust to the negative ones. And reach out. Find a counsellor, join a support group. Your most effective and powerful tools are your social abilities. Human beings need each other. And, above all, before you decide to do something desperate, pick up the phone. Heck, drop me an email or reply to this blog. I’ll do what I can.    viking3082000@yahoo.com

When Things Get Bad: Being a Patient In a Psychiatric Hospital

This is a shot of the sunset over what used to be the Edmonton Municipal Airport. The planes on display, which you may have seen before in other posts are part of the aviation museum. It always kind of bothered me that they would put the last of the three up, a surface to air missile called “the Bomarc” This missile holds a lot of meaning for Canadians, because it was what we got in exchange for the Avro Arrow, the most famous of all Canadian planes that never went into production. The Bomarc on display is something I also disagree with because it was originally designed as a nuclear missile and like many of my time, nuclear war was a very real and scary possibility.

To get on to the stated topic, there is a lot to know about hospitals, especially psychiatric hospitals and psychiatric wards of ordinary hospitals. The first big thing that I didn’t like about being in a psychiatric hospital is that there is often very little medical help and poorly funded medical/dental help in these places. When I was 19 and had nearly destroyed my knees from too much running, I actually encountered staff members who purposely moved my room to the end of the long hallway of the ward I was on to discourage me from smoking, while at the same time being completely ignorant of the incredible pain and discomfort of my injuries and constant requests for tensor bandages, and even a few times, a wheelchair. I even tried to appeal to my Psychiatrist, who had taken the full training of a medical doctor and he simply told me, “oh, I forgot all that medical stuff years ago.” Then, somehow an appointment was made for me to see an orthopaedic surgeon, and after waiting just about the entire three months it took to see one, a nurse casually informed me that she had taken it upon herself to cancel my appointment because she didn’t think I needed it.

Funny enough though, being in the hospital can be a very productive time. One of the biggest problems is that while you are there you may be very ill mentally and not be able to participate in any of the programming that could help. Things like communication groups, anger management groups, can teach a person to better manage their lives and better communicate to others when they go out and try to rebuild something of a normal life. Something that has to be stressed though, is that the people you encounter are likely a good deal more sensitive about things than you realize. I can remember getting into trouble because some woman overheard me talking about sex. I was 20, I didn’t have many other topics on my mind. I didn’t even say anything to her, I got into trouble for talking to someone completely different than the person who complained. All I could do was suck it up and try not to bring up the subject.

The other problem I faced a number of times is with regards to a psychiatric hospital. The hospital I went to was divided into two major parts, one for forensics, and the other for people who hadn’t yet been convicted of a crime. Many times I ran across some very seriously bad people in the non-convict section I was in. I vividly remember a man who was on my ward to be assessed to see if he could get off a crime he had committed for mental health purposes, and he made some very serious threats to me. Should he have been in the forensics part the whole time? I honestly believe so, but the doctors didn’t see things that way. In a more recent visit, there was a guy from some middle eastern country who for some reason didn’t like me. One day we got into an argument and he attacked me. I was accused of starting the fight, but he was the one who tried to dig his nails into my carotid artery so he could end my life,

I really don’t want to scare people when I write this. I do admit that I am ranting though because these things never should have happened. What are some of the ways others can avoid serious problems like this? First of all, while it is a given that you need to be completely honest with your doctor about what is going on inside your head, you also need to communicate with the staff where you are a patient about people who are giving you problems/on your case. Most of the time the staff can deal with it. If you find yourself in a serious situation where you think someone is going to attack you like happened to me a number of times, the best thing to do is to assume a defensive stance, and yell for staff as loud as you can.

I can also recall though being assaulted by staff members. This seems almost impossible, but it was a daily reality for me when I was last in the hospital. It was a very difficult situation because my doctor was avoiding me completely and I was on medication that was not helpful at all. If he had talked to me, he might have realized that I needed a mood stabilizer, a pill for psychosis, and an anti-depressant, Instead he played golf or whatever they do when they don’t feel like doing their job. My family and I tried everything to have this situation dealt with, and nothing ever came of it, and the same Doctor was later made head Psychiatrist of the entire Hospital. But regardless, not being on proper meds made it almost impossible for me to think straight or be as pleasant as the staff preferred me to be, and as a result, with the express order from my absentee doctor that I should be placed in isolation at the first indication of problems, I was put through this torture. Once, when I was locked inside the isolation room for a long time, I put the plastic mattress up against the wall and slid behind it so they couldn’t see what I was doing. The staff member watching me came in and a fight ensued, I grabbed his ‘life call’ button and pressed it and all kinds of alarms went off and other staff came running from all over the hospital. As a result, with too many witnesses, I was spared a beating.

The fact is, most of the people who will end up looking at this blog will have been through the very difficult stages of being in a psychiatric hospital. What I am hoping to get across is that it is very important to have a good psychiatrist, and to be honest with them, take your medications and never miss your appointments, and when you feel your mental health is starting to deteriorate, get in touch with your doctor and try and get into a hospital ward for psychiatry rather than a psychiatric hospital.

Then comes the day to day business of surviving as a patient. I recall that my time was best spent in the hospital reading and listening to classical music. Reading was difficult, and many of you may too find the same thing. Often when you are in the hospital you are getting your medications changed around and until you get used to them it can be hard to concentrate. I do like to remind people though that with medications, it takes time for them to work, time for your body to adapt to them, and there is also a period of time that you need to adapt to how they affect you. I take a number of pills and they make my hands shake, but now after 15 years on a similar dose, I know how to function. My typing speed and pool game aren’t what they used to be, but I can function, and I can maintain my mental health.

There is another factor that I have encountered regarding hospital visits. It is a difficult thing to go into a hospital and adapt to the conditions there. You need to get used to the food, the institutional air (which people often feel contains some kind of funny gas, but the doctors breathe it too). Then, you adjust, you get to know a few people who are patients, a few staff members and doctors. Then you are deemed well again and sent home where you go through another serious adjustment. When you are leaving, this is the time first of all to get yourself involved in life skills classes or support groups in your community. Make sure and rekindle any neglected relationships, this is when you are really going to need your friends. The one thing you have to be careful about is trying to form long-term relationships, be they friendships or romantic involvement, or even friendship with a staff member. First of all, staff members may seem friendly and nice, but they have professional ethics, plus may not like the idea of having to interact with people when they aren’t getting paid. This happened to me when a doctor and a nurse who I thought cared simply dropped my case and never said another word to me because they didn’t feel I was trying hard enough. In my mom’s case, she had the same nurse/therapist for years and tried calling her up at her office one day after their professional relationship ended, and she was devastated to learn the nurse wouldn’t even say one word to her.

As far as friendships and romantic involvements go, it can be nice to sit down with people and talk after going through therapy and dealing with the same food and the same staff members. But everyone who is there as a patient is there for a reason, most likely a very serious reason and it almost always ends up in disaster when you try to continue these friendships outside the hospital. Once I met a young woman who was an independent film maker and I showed her a copy of my book. We seemed to get along great, there were some great positive things about her. But shortly after she was released from the hospital she accused me of stealing her manuscript (my first work of non-fiction, “Through the Withering Storm”) and then accused me of “stealing Ian’s treasure box” which I don’t even know a thing about. There were other problems. Once I met a guy who was supposedly going to help me get my truck driving license and I simply never saw him again.

This one is getting long, so I am going to mention one last thing. If you feel your mental health is deteriorating, do everything you can to stay out of the hospital, but make sure there is someone who cares to help you decide when the breaking point will be. Keep a bag by your door with a few things you will need to help get you through the difficult days at the hospital. A radio with headphones can be a lifesaver. Simple to finish puzzles can also help. Then a few hygiene essentials such as toothpaste, toothbrush, etc. and a change or two of clothing. It is often best (unless you have made an attempt at suicide) to get a ride or take a cab to the emergency department. Many paramedics get pretty snarky when you don’t appear to have any surface problems even when your life is falling apart on the inside. Your bag could include $10 for a cab ride if you so choose. It would also be good to bring a small journal, which could be used for many things, including a sort of diary for how your mental health progress is coming. Don’t be afraid to write down some goals related to your recovery, and even some goals you just want to do to have something to look forward to. And please, please understand that many people do care and that there is a way, there is a light at the end of the tunnel. You won’t be a hospital patient forever, and everyone can have a full and productive, happy life, even with a mental illness.

Stigma and Disability: Will Mental Illness Destroy My Whole Life?

The photo above is a close friend. He worked hard for many years, built up an excellent work record, bought a home and has been to many places in the world. Now, after a lifetime of struggle, it sadly seems that compulsive spending, depression, alcoholism, hoarding, and other problems came about from him growing up in poverty and working so hard that substances were his only escape. It all seems such a waste, but even for my friend there is hope.

For most of 2001, I was a patient in a locked ward of a very unpleasant place, the provincial psychiatric hospital. Now, in 2018, I work there and am paid well. This and other jobs has allowed me to do so much, including travelling to London and Hawaii, buying the computer I am using now, having many friends, and living a comfortable though somewhat sparse life.

People are often amazed that I have been able to write more than 10 books, and to get up in front of people I don’t know and talk about the intimate details of my illness. I think a lot of it comes down to the fact that I’m not so much afraid anymore. I have experienced great loss, adventure, been close to death, but there have been some simple axioms I took to heart that have gotten me through.

One of them was from a young man who was an engineer. He said when engineers work on a very large, complex and difficult problem, they will break the larger problem into smaller ones and solve them one small piece at a time. There was another man who I have never met, but who wrote an excellent book and is an example to every young person in the whole world I feel who attributed his success as an astronaut and space station commander by always making sure he had taken the time to properly prepare himself for tasks to come. When I want to sit down and start writing a book I can’t just put pen to page and expect it to come out perfect. I draft up several possible outlines, then toy around with some dialogue, maybe even try to picture my main characters and, by hand, write out some dialogue. If this starts to engage me and I keep on for pages with my pen I know I have something I can continue to work on, to craft into a cohesive story. But most of my books came more from just writing a little for one sitting. I would write a poem and then transfer it to computer and then cut and paste it into Facebook and when I had a bunch of them I would self-publish a book of them. Easiest thing in the world. People even buy them and enjoy them. In a way, I used these two methods of planning and preparation to overcome my severely diminished state after I was last in the hospital.

I had to start with a small step, and I decided it would be medications. I took each dose at the proper time and then looked at the rest of the day as my free time. Not wanting to waste my days away watching TV re-runs, I would try and read a little in one of my Steinbeck books. One of the amazing things was that now that I was over the worst of my symptoms of mental illness, and people could see that I was trying to improve my lot in life, help seemed to come from every corner. My dad would take me for walks, a part-time job allowed me some comforts. Even the cooking chore I had to undertake every two weeks or so taught me many things I never knew about food.

When I think of how the other point I made, of making sure you are adequately prepared for something, especially something difficult that you need to do, I think of a close friend who I knew since high school. Before my most recent stay in the psychiatric hospital, I was extremely delusional and ‘manic’ as well as having other symptoms of psychosis such as thinking the radio was talking about me, that I had billions of dollars and so on. At this time, her sister had heard I was having troubles and tried to help, and for want of a better term, I scared her half to death. My long friendship was over and I was devastated. Almost a year later, I went to see her and it was only because in advance I wrote down what I needed to tell her and predicted how she would react that I was able to successfully convince her she could trust me and that it was worth having me as a friend.

These are common tactics, writing out a script of what you might say to your boss who you know is debating whether or not to fire you. Setting goals, no matter how preposterous or long-range they are, and then setting smaller, more attainable goals that lead you towards that better place. I often think these things can get a person through anything.

One of the things I would like to touch on today may only apply to Canadians, but I will try and add a universal component for people in other countries. One of the hardest things to face when a person is diagnosed with a mental illness, and spends time in a psychiatric hospital is the poverty that is going to follow, perhaps for the rest of their lives. The Canadian Government developed a plan to help those who are disabled for any reason to overcome this, it is called the Registered Disability Saving Program (or something similar-ask your bank staff) this plan allows you to put somewhere around $2,000 to $3,000 away in an account, and have grants and subsidies top up that amount by multiples of two or three times. You can’t take it out for ten years, but it could really go a long way for a person to take a trip or to buy a home.

This seems almost unfair to Americans or people in other countries that don’t have this program, but I think even people who have a savings plan could benefit from my second favourite book ever, “The Richest Man in Babylon” by Richard S. Clayson (my favourite book being “Zen and the Art of Motorcycle Maintenance” by Robert M. Pirsig.

In the ‘babylon’ book, using historical figures and examples, a plan is explained where a person takes a careful look at his earning and spending and tries to get his or her spending down to just 70% of what they earn. 20% of that is put towards debt, and the remaining 10% goes to savings, which, as it grows, you invest. Regarding the investment side of it, the book talks about a very simple strategy to keep your money growing, or at least safe. If you want to invest your money, seek out advice. But make sure that the person giving it has spent all their time and effort in their entire lives to being an expert on what they are talking about. Getting a tip from your neighbour who is a musician that stock in a steel mill is guaranteed to double just doesn’t cut it. But the musician might be a great person to consult to find out which brand of marijuana stock is the best one to invest in based on his own personal choice of the stuff.

Another factor that many people don’t factor in when they think of living in poverty as a disabled person is that as time goes by, especially if you can find a way to work (when I got out of the hospital in 2001 I was useless for any task, but I could still work as a security guard and it gave me a sense of self-respect and some extra money for things), as you get older, you will not only learn to use and invest your money better, you will also have paid for much of the things you want and need and the pressure to always get more money and more stuff will lessen. Of course, you are also free from the thing that made me want to buy a sports car at 18 instead of saving for University-peer pressure.

So, all I really have to say if I must sum it up is that with diligence, a steady and focused effort day after day, week after week, planning and preparing, your life may not just get to be as good as most, it just may get better. And remember, people really do care.

 

Psychiatric Medications and Weight Gain: Can They Be Controlled?

A reconstructed Hotel and Canada Place. Both have meaning to me, the one in the background (Canada Place) is where I worked myself half to death helping my Dad paint stairwell doors for untold hours each day when I was in High School. The hotel, according to legend, is one that Leonard Cohen stayed at after being kicked out of the Hotel MacDonald, just up the street.

 

So here is how it went: I was a skinny kid when I went into the hospital 17 years ago. I think after making an effort to fatten myself up, I was about 170 pounds/77 kg. I got out of the hospital and life seemed pretty bland, but I enjoyed my freedom. I enjoyed it so much I nearly lost it just a few months after getting it back. I would eat three meals a day, then late at night go buy a large bag of chips and a submarine sandwich. If I had the money I would get a pizza. What I remember is that I was so ravenously hungry that if I didn’t have any food I wouldn’t sleep that night. So I ate and ate and ate. The more food I took in, the more food I was able to take in. I was exercising, but mostly just light walks through the river valley with my dad. Time passed and before I knew it I was 260 pounds/118 kg. By some miracle, if I got much higher than that I was able to fast my way back down. If something happened, I would drop a few pounds but they always seemed to come back.

The first thing I wanted to mention is actually really sad. My mom had a mental illness. She was such a sweet, kind, and caring person and she tried so hard to lose the weight that three kids and a bunch of pills made her get to. After years of trying various diets, she decided to try walking. She ended up walking about five miles each day and the pounds just came off. But maybe she did too much. Maybe she had the early signs of osteoporosis. We don’t really know. What we do know is that she ended up with a crushed vertebrae in her neck. The stress of surgery for it messed up her diet and exercise and not only did she gain weight rapidly, her mental health became very poor and she had a few admissions to hospitals. She spent the rest of her life overweight.

What happened to me was that I moved into my own apartment and was able to cook any type of food I wanted. Thinking that if the Irish people could do it, I could do it, I ended up eating way more potatoes than was healthy. I would bake two of them in the microwave, slather them with butter and salt and gobble them up. I started in on easy, deep fried or fast food. I stocked up on chips, pretzels, cheese puffs and all that. And I ate out a lot. It didn’t seem all that bad. I wasn’t having that much sugar–or so I thought. I was exercising a lot, though just hovering around the same weight. I was also eating a lot of TV dinners. A good friend was appalled because he used to be a prison guard and that was what inmates got.

So one day I ended up having a pretty bad stomach ache. I went to a walk-in Doctor and he prescribed some pills and sent me for some blood tests. When I came back expecting to be complimented for my fitness, he told me that I had diabetes, I didn’t believe him. Even with all the eating and the rolls of flab on my midsection I really thought diabetes was impossible. So I asked for another test. For this one I had to fast for 12 hours. I should have known the night before what the results were going to be. I nearly went mad with hunger. I drank all kinds of water (the only thing allowed before the test) and my whole body screamed out for something fatty or salty or crunchy. Despite staying up all night I made it through and the test was that I had to drink a large glass of sugar water with some orange flavouring in it and then wait for two hours for them to re-check my blood sugar level. I failed. It all seemed so surreal.

I had heard and read that type two diabetes can be reversed, but a doctor assured me that if I reverse it I would still have to stay on a special diet for the rest of my life. Of all the people in the world, the one person I needed most to be able to talk to was my Dad, but he told me in no uncertain terms that diabetes was something that Doctors make up to sell pills. He practically made fun of me. I didn’t hold it against him but I kept it clear in my head the old men I saw in a hospital I worked in who had limbs missing from the same illness. Or the teacher from my junior high who taught us about diabetes and how it greatly shortens a person’s possible life span.

So I had to dig in and form a plan. All sugar was now out. All white food, and fast food was out. Snack food–gone. I did decide that I could eat popcorn but my teeth aren’t in all that good of shape either so it had to be in moderation. On top of all this, I had to start reading every ingredient and every nutritional label on any product I planned to eat. For the first while this was really hard. So many things have high levels of fat. So many of the foods I loved from tomato soup to submarine sandwiches were off the scale for things like salt in the soup and fat in the submarine sandwiches. It seemed there was nothing I could eat. And as an added bonus, I had to start taking a pill for cholesterol and another pill called metformin to regulate my blood sugar level. I also got a kit for testing my blood at home and actually I kind of found it a bit fun–until I had to prick the same finger a dozen times and it got sensitive. The metformin caused me dizziness and tiredness. Fortunately, like many of my psychiatric medications, after time it started to work and the bad side effects mostly went away. I did notice that the metformin seemed to make me extremely jumpy and my nerves were on edge.

And as time went by, I started learning about what my body needed when my blood sugar level was low or when I couldn’t sleep. My Psychiatrist had approved certain pills for use when I needed to sleep and I hate to admit I took more of them than I absolutely needed.

What really seemed to save me though was walking. I have always done a lot of walking, but now I started to take it to almost extremes. My moms record of five miles a day didn’t seem like much at all. I would walk four miles, go for a swim, then walk four miles back. I always felt so anxious about getting to a scale at a pharmacy or a doctor’s office just to see if I had lost another pound. A few times I worked way out in the West end of Edmonton and walked for around three hours to get home. Now I don’t know what to do.

I did something significant. I lost 30 pounds. I found I slept better, I could bend over and pick things off the floor when it used to be a very hard thing for me. I also saved a bit of money because I wasn’t spending cash on fancy restaurants or garbage food. I have to admit I don’t get all of my vegetables. When I cook up a supper though, I often add in frozen peas, broccoli, green beans. I actually like the taste of them now. I have been doing so much learning about food and nutrition it has been a lot of fun. Who would have thought an illness that threatened life and limb could be described ‘fun’?

So here’s the sad part: a lot of people I know who have mental illnesses and take medication have diabetes. One of these people has it because of overeating and inactivity. His culture, the way he was raised, was that one ate until you were full. I will never forget going for breakfast with him one day and watching him clear his plate, then order another special. Another friend who is on even more medication than I am had some incredible success with a system I am trying to do myself. One plate, four sections. One quarter is your meat, one quarter is a vegetable and the last two are some kind of greens.

Gaining weight, having diabetes, and many other issues from heart disease to colon cancer are serious issues for people with mental illnesses. What I have found though is that if you can just somehow tough things out for a couple of weeks you will start to change how you taste things and you will almost miraculously be tuned into eating healthy food instead of junk or fatty and salty food. I would so much rather go to my fridge and get a navel orange or some grapes than pretzels that are doused in salt. I will admit though, as I mentioned, I do love popcorn. It is incredibly cheap, has great aspects to it like its high fibre, low-fat content, and there are things one can add to it like nutritional yeast that make it taste divine. I do still add melted margarine and a little salt, but I make sure it is non-hydrogenated, low calorie margarine, and I go as easy as I can on the salt. Remember that your body does need some salt and some fat. The trick is to exercise it off.

So are there any alternatives if you feel your situation is so far gone even a diet won’t help you and you don’t seem to be able to exercise? In most countries my blog is read in, there is an option called bariatric surgery. There are actually a few surgeries, but bariatric is the only one I know anything about. There is a waiting list to have the surgery done, which is time you spend acclimatizing yourself to having a much smaller stomach and learning how to keep up a healthy diet and other factors. It doesn’t work for everyone, but I have seen it work. If this situation sounds like you, talk to your MD.

Well Dear Readers, this session of blog writing seemed to go a little long. I hope some of it helped some of you in some tiny way. I encourage you to make comments when you read this, it really would help me keep coming back to write these knowing there are people out there who are being helped by it.

Best,

LG

 

The Scourge Of Mental Illness Stigmal and the Ways it Can Affect Those With Bipolar and Schizophrenia

To me, the idea of flight always seemed to symbolize freedom. I saw this in many ways, one of them in which I envisioned myself as the pilot of a plane. I even took some training and went to Commercial Pilot’s School when I was younger before I had a mental breakdown and had to stop. Other ways could easily be explained in some of the writings of Richard Bach, perhaps best in the short work, “Jonathan Livingston Seagull”. There have been so many times, most of them right in the city I live in, when I felt some negative feelings or had low self-esteem for a moment and would just stop and take some time out to watch birds in flight. Even the lowly gulls and magpies had such incredible amounts of skill that it surprised me their brains were in such tiny areas of their body. The other way is also about a dream that came true for me, when I was able to board a plane and fly to London, England. This has been a dream of mine since I went there the first time. As a kid, I even went to the post office and asked how much it would have cost to mail a package suspiciously the weight of a 12-year-old to England. It was thoughts like these, those quests for new heights of achievement, new realizations of goals I never imagined I would reach that kept me going through the difficult times.

I don’t know if I have written much about the hardest times when I was last in the psychiatric hospital. There was so much time spent not just locked up in a small ward, but also locked into an empty room, screaming, swearing, kicking, pounding my fists in opposition to the way I was being treated, which likely only made them feel that I did belong in an isolation room even more than they initially thought. When I was in there, I kept one idea firm in my head: this would pass. This would happen, but it will end. There were times I wished I could have found a way to kill myself to make the pain stop, times when things seemed to overwhelmingly impossible to deal with that I broke down in tears, but somehow I knew it would end.

It is funny, but in my last hospital stay, I was transferred out of the locked ward and put in a less intense one and there was a woman who talked about living in an apartment and having a friend come over each and every night to have tea with her and talk/visit. That small bit of solace, that image of having just one friend nearby was something that hadn’t really ever happened to me–until recently. There is a young woman my age that lives in my building and we have become friends, and we talk over a cup of tea just about every night. In so many of my previous apartments, the other people in the building never came over for a visit, or did come over once and never came back. It is a funny thing, but I encourage people with mental health issues to find housing where there are many others with similar issues to yours. The big thing about that is that when you put two people together that both deal with all the struggles and difficulties of depression or mania or schizophrenia, there is simply no stigma, they can relate on a very important level. That is why organizations like AA work, that is why a lot of psychologists put an emphasis on group therapy.

Stigma affects just about anyone with a mental illness, and even effects those who work in the field and have family members with an illness. My dad told me once that back when he was younger, in the 1940s I think he meant, if a family had a child who had a mental illness, they would build a special room for them and either lock them in there permanently or whenever they acted up. This sounds so incredibly inhumane, but my first reaction to this was to think of how terrible it feels to be in a psychiatric hospital separated from friends and family. I can recall years back when I first spent time in Alberta Hospital and later when I was in the same place and others, that I could go a very long time without having any visitors, and when I was lucky enough to have a visitor, it would be my dad who, sadly, I didn’t get along with all that well when I was younger. I can remember getting my first apartment and then getting my very own phone and thinking that as soon as I plugged it in I would get all kinds of calls from old girlfriends or people I grew up with who lived in the suburbs of the city I had moved to at the time. After having the phone about a week it finally rang–and on the other end was an incredibly abusive and hostile credit collection agent. It was so bad that during that time I had so few calls from anyone I actually wanted to talk to that I would answer the phone by yelling into it. Once or twice, when the collections people called about my student loan or student credit card that I received for a course I could no longer physically attend, I would deny that I was the person they were looking for. Of course I was lying my face off, but it was fun to confuse these people not knowing whether or not I was a fair target for their abuse. Then one day they got smart and had an attractive sounding young woman call and in a very positive voice she politely asked for me by name. When I said it was me, she put me on hold and in seconds a vile, abusive and hateful collection agent was put on the line again. For a minute I had thought this was one of those people that I had spent my entire life around in my suburban home from age 0-18 who actually wanted to get ahold of me. I think that was around the point I had my phone disconnected and went and bought a roll of quarters so I could use the payphone down the block. It really surprised me that seemingly no one at all that I had grown up with had any interest in contacting me, even my former best friends. The pain and loneliness I went through at that time was immense.

There are so many ways that stigma can effect people. At first, when I was officially labelled, a lot of the stigma came from right between my two ears. I had done some things that I felt awful about. One of them was to pick a fight with a guy who had really done me no other wrong than laugh at me while I was in a vulnerable state of mind. That situation led to me being arrested in my high school and resisting arrest when I learned that I was being taken out of my school in front of each and every member of my peer group. All my thoughts and actions were so confused. For some reason I followed a girl around my school and I don’t know what it made her think. And lastly, and perhaps worst, I was in the mall in my home town and my voices or delusions somehow made me think I was supposed to accompany a girl at the mall to her home. I walked with her and for some reason she didn’t say a word. If at any time I thought she didn’t want me there I would have left, but I got no indication. Then, without any more words, her and I got in the van of the person who was giving her a ride. I looked over and the poor girl looked terrified, and was soon in tears. I realized that I had been deluded by voices or whatever was going on in my head and so when the van stopped I got out and as I closed the door I heard the young person burst into tears. This is perhaps the greatest regret I have to this day. At the time my guilt was so severe that I had made a decision to join the army, and volunteer to be sent to the Persian Gulf where I hoped I would be killed. I began intensive training to get myself fit enough to join the military, running countless miles each day and lifting weights in between working a warehouse job. My own self-stigma was eating me alive. I pushed myself so hard I got what I would almost describe as a second disability, my knees were mostly destroyed from too much running.

The sad thing about all of this is not that I hurt my knees or any of that, it is that all my life I had been conditioned to shun, stigmatize, insult, and perhaps even fear those who were mentally ill. Everything from Fred Flintstone cartoons to stories in Batman comics about the insane, obsessed Joker gave me a very unrealistic image of mentally ill people. If, four years before the above incidents happen, I had been able to accept a diagnosis and medications to treat it, there would have been almost no question at all of me being ill at the age of 18. I might have even had a youth that I could look back on as being pleasant, not wracked with loneliness and depression. My worst enemy in all this? Myself. The stigma towards mental illness I had towards myself.

Well, dear readers, that is quite a bit for today. I want to thank all of you for following me. All I can really say is that there are many more to come. I am consulting with others now to make a complete book of essays on my knowledge and experience, and some of them will be based on these blog entries. For now, I just hope you like my writing on this blog enough to share on Facebook or retweet on Twitter. It is the support of people who get something out of my words that keeps this blog going. I don’t actually make any money, but I get rewards when I hear from those who read this and they say it has helped them in some way. Best wishes,

Leif Gregersen

The Last Big Battle: Stigma and the Psychiatric Patient

One of the hardest things to explain to a lot of people who are not working and on meds is the great joy one can get waking up early to watch the sun come up. This photo was taken on one such morning as I returned home from the swimming pool.

 

Mental Health Stigma:

I don’t know, but a lot of people may think I spend quite a bit of time talking about stigma. Perhaps it would be useful to first explain what I think stigma is, and then with some firm groundwork it will be easier to understand. The dictionary definition of stigma is, “A mark of disgrace on a person because of a particular trait or quality.” Sorry if you lost me there, that is just paraphrasing. My own experience of having stigma towards mentally ill people came to me while I was in the psychiatric hospital. I had been there before, just never as a patient. My mom had spent quite a bit of time on the hospital ward that I, 14 at the time, was now a patient in. And older man, likely not much older than I now am, approached me and wanted to give me some friendly advice. He didn’t say anything mean or get angry, he was truly trying to be helpful, but as he spoke to me, a large stream of drool came out of his mouth. This scared the life out of me. What if I would end up like this man? It could have easily have happened, and drooling is a side effect of many medications, but my own idea that I could ‘end up’ like this man was very skewed because right away I blamed my parents as they were the ones that put me there. I didn’t blame myself as being so difficult to deal with that I had to be there, I blamed them. I still remember telling my dad about this man and being nearly in tears. I think this is a good example of people in society in general and how they feel about mental illness, even a good example as to how irrational assumptions and mistaken prejudices cause stigma.

Of course there is much more to stigma than that, but fortunately times are changing. I would like to use homosexuality as an example. It is no longer cool to single out people because they are effeminate. Only the crudest of people use words like ‘gay’ when trying to describe a negative quality of something. This was not the case just a short while ago. I have a movie I really enjoy, it is a Clint Eastwood film called “Heartbreak Ridge”. The movie would have been a complete bomb if it weren’t for the incredible insults and funny lines that came out of Clint Eastwood’s mouth as he played the role of a Gunnery Sergeant in the United States Marine Corps. The odd thing? That this movie was made in 1986 (approximately) and had so many derogatory things to say about homosexuality. A movie like that now likely wouldn’t have even been made. In the film, something that seems to drive Clint’s humour is to constantly refer to his ‘men’ as ‘ladies’, to give them insulting names like one soldier whose name was Fergetti, which Clint changed to ‘Fag-hetti’. These days, we have gay pride parades attended by politicians who have no fear of being labelled, but in fact applauded for standing up to homophobia. I am often reminded of a teacher who taught me, my brother, my sister, and many of my friends who I dearly loved in junior high as the best teacher I had ever known, who in recent years came out and I now feel no differently about him, though if I had known as a teen I may have felt differently. The cool thing I am getting at is that things are changing. Now, there is even a gay character in Archie comics.

When you turn back the clock some more, you will end up in the time when a similar stigma or ignorance was around over cancer. In the 60s, and before, people didn’t talk about cancer, it just wasn’t mentioned. When this began to change, more people were willing to get checked out and more of those same people were treated at stages where more could be done, and more people gave donations towards research. Sadly, mental illness is one of those things that in many ways still remains ‘in the closet’.

It almost seems sometimes that our society, our media, our entire culture is dedicated to labelling and ostracizing those who are suffering from mental illness. A quick look through a comic book (I am a huge Archie comics fan) from just a few years back will find references all over to “crazy” behaviour, people needing to be taken to the “funny farm” as though they were problems as real and destructive and the bubonic plague. The fact is that mental illness is not a communicable disease, and it is much more common that people realize. The fact that it is not talked about people fear it a great deal.

Stigma can affect people in so many ways. I always wonder whether or not I can tell an employer or a co-worker or just about anyone related to my working life about my illness. There have been many, many times when I applied for jobs and didn’t get them possibly because I was honest about my mental illness. There are two things that can be done to combat these situations, one is that my mental illness is not something I am required to disclose to an employer, and if I can prove that I was discriminated against I could have grounds for a lawsuit. The sad fact is that, especially in the Province of Alberta, many employers simply don’t care and the law is slanted to their side regardless.

One of the things that I like to try and get people to consider is what I am like when I am extremely ill. People will see me misunderstanding things, acting on information that is false, saying and doing strange things. But never will I have any desire to hurt or harm anyone. It is much more likely that when I have delusions I see myself as some kind of Spiderman or Batman figure, someone who is mandated to help others. Something I feel is important to note here is how incredibly disturbing it can be to have a mental illness and be in active psychosis. I have these recollections of my illness completely inventing things said by others, and having things said on the TV or the radio tell me that I am some movie star or hero when in fact I am so debilitated by my delusions that I can hardly even move. So basically, stigma is destructive to a large percentage of our population (one in five people are believed to have a mental health struggle in their lifetimes), it causes the illness to get worse, just as homophobia never made the world a better place or hushing up things like cancer only hampered progress and treatment.

So if you are reading this and you don’t have a mental illness, I strongly urge you to try and understand more about mental illness and those who suffer from it. A lot of ignorance even exists in treatment centres where people with mental health problems need to go when they are ill. If you are a person with a mental illness, I would not only love to hear from you and your own experiences with your illness (viking3082000@yahoo.com) but I would encourage you to become an advocate, to speak up for those who are unable to speak. This could be done by writing a letter to the editor of your local paper, by gently confronting those who say things that are insensitive to your situation and setting them straight, or even just by being a good friend to others you know who suffer and visiting them in the hospital when they need to be there. If you have a favourite comic book, TV show or any other type of media and you notice as I did that they make inappropriate use of terms like ‘crazy’ or such terms, contact them. Google them and send them an email. Never in history has the individual who is willing to stand up for what is right had so much ability to influence the world. And dear reader, keep reading this blog and support (financially and personally) organizations like your local Schizophrenia Society or mental health organization.

A Whole Bunch of Mental Health Recovery Philosophy and Self Care Wisdom

Well, this is downtown Edmonton again. In days long gone there was an old woman who was known far and wide as the “got a quarter” lady who was once immortalized in an oil painting. This woman was the very definition of a downtown icon. There was also a man who was a street corner preacher who could often be upsetting and somewhat hostile. Now, more and more the downtown core is either steel and glass office towers or another added condominium complex. My big question as I see old buildings get torn down and expensive new ones opening up is, where do all the homeless, the jobless, the hungry, and especially the mentally ill go? The hospitals haven’t gotten any bigger, actually one of them, the famous “Charles Camsell” hospital was shut down and is now being redone as apartments. Despite all these new buildings, affordable housing is at a premium and the agencies that offer housing and care are fewer and farther between. I am so fortunate to live in subsidized and supported housing, but I often wonder where I could go if I ever had to leave here.

Regardless, there are more important things to discuss. I am happy to report that my transition from my once every two weeks’ injection has been successfully changed to invega, which only needs to be administered every four weeks. I am also getting used to my diabetes medication, Metformin which at first made me weak and dizzy. I feel that anyone who has a hard time taking medications really should try them for at least 3 or even 6 months. It is amazing what kind of changes can go on in that amount of time, our bodies can be extremely adaptable.

As far as my insomnia has been going, it has improved. I was sleeping on my new futon and had no idea that my back just wasn’t prepared for a firm mattress. I have gone back to sleeping on my good old Salvation Army $500 pillow top mattress and I have been getting such a great sleep. I was a little worried for a while because I had been using some mild sedatives to get me to sleep for a while, but now that I have gone back to my own bed things have normalized.

I don’t know how many writers there are out there who read my blog, but I do think that anyone who has mental health issues, and also for that matter, anyone period, should keep a journal of their thoughts, ideas, and general progress towards their goals in life. For example, something I have learned by keeping a journal is that taking my medications at the same time each day, as in 5:00am and 9:00pm is much more beneficial than taking them when I wake up or when I go to sleep. One of the reasons this is so much better and has afforded me a much improved quality of life is that when I get up at 5:00am I can have some time to myself, do some reading or some writing, and then go for a walk to a swimming pool or something like that and then have an entire day ahead of me. Getting into synch with the world outside my apartment has given me the ability to work part-time on a regular basis, make connections and make friends I never would have met, and literally publish 11 books in a short amount of time. I am also pretty positive that my medications work a lot better on my symptoms when I take them like this.

The other thing I wanted to discuss can be something hard to do, but it can be incredibly beneficial to a person with a diagnosis of a mental health issue, be it OCD or bipolar or schizoaffective disorder. It is all about having a friend. For some, especially those who are ‘shut in’ their homes, a pet can be the only friend they have. This is great, and I don’t knock this at all, but having a person you can do things with, go places, watch out for each other is something I consider almost an essential survival tool. Where do you meet people to be friends with these days? I used to meet a lot of people at 12-step meetings, but I think this can be an extremely bad idea. Not to knock the meetings, they do incredible good for a lot of people who couldn’t find any other way to get it, but in my own experience these people can be very controlling, aggressive, and often abusive. I don’t want to discuss any identities, but I will say I had two close friends I met in meetings that I should have ran away from screaming if I knew what they would do to me eventually.

I think one of the best first steps to finding friends is to get involved in a local schizophrenia society or mental health organization. This can be really difficult if you live in a smaller community, but if you are reading this it means you have access to a computer, which means you can access online resources. You can go to Youtube and learn about your illness, cognitive behavioural therapy, and look up your medications. Having knowledge of these things will help you in dealing with your own illness, and it will also give you a chance to one day give back to others who could easily be unknowingly suffering from a mental illness. I do know also that all of the resources that the Schizophrenia Society branch I work for are online as well, including podcasts, support groups, and more. Lastly, if you can afford it or if you can find a practitioner who works on a sliding scale, you can actually get counselling over the computer. As a last side note, there are many 12-step meetings online as well. Anyone who would like to access resources like these, please feel free to comment on this post or email me at viking3082000@yahoo.com and I will do my best to inform you of resources in your area.

Well, dear readers. Once again I am leaving you without a poem to think about. I would love to write more poetry and put them in these blog postings, but I have felt the writer’s block for the past couple of weeks. If anyone out there writes their own poetry, and doesn’t mind others seeing it, I would be more than happy to put a poem I choose with my next blog, but don’t worry too much, I think I am at heart a poet and will have more for those who enjoy them soon. For now, think about some of the things I have been discussing with regards to being mindful of your surroundings (for example by taking a walk and noticing things like what the wind feels like, what the temperature is, what birds can see you, what kind of people live in the neighbourhood) and also think about what I said about using medication times to ‘synch’ yourself with the outside world. Isolation can be poisonous to those of us who suffer, keep it to a minimum and remember you can always reach me at viking3082000@yahoo.com

Chronic Mental Illness and You: Never Give Up

Today’s Photo is a picture of Rogers Place. Here the Edmonton Oilers battle things out game after game, for the hope of bringing home the Stanley cup. Some of them fight addictions, all of them deal with incredible amounts of stress, but they share one thing: They have made hockey their lives, their entire lives. I dearly wish that each of you who read this blog can find that one thing that keeps them in tune with the human race, gives them purpose. My ‘thing’ is writing, and now I am finding that it is also teaching. Without these in my life I would fall back into a negative mindset in a hurry, it would almost be a death sentence.

When we deal with a mental illness, perhaps the most difficult part of it is that we often lack a sense of awareness of our own condition. This is called Anosognosia, and I know I have had it. When I was 18, despite that I knew my thinking and concept of the world was extremely skewed, and that after spending a month in a psychiatric hospital on medications I just about literally ‘came back from the dead’, I thought I knew more than the trained specialists who could see what was wrong and fix it. I don’t know why, but I thought Psychiatry was all bunk and I just wasn’t ready to give in and take medications that I felt turned me into a zombie. Talking to Doctors about it, I have learned that this is very frequently the case in people who are recently diagnosed. You simply can’t be mentally ‘fixed’ until you realize what is broken. The worst part of it all? I actually thought that if I was honest with the Doctor about what was going on in my head that I would never leave that hospital, and that scared me. It was a horrible experience, being acted on with violence from the staff who could also give me injections of incredibly barbaric medications when I wasn’t complying. Abuse and violence also came from the other patients, and all of us were locked in together in one cramped, cigarette smoke stained place. There is one memory that sticks out though, there was a young man my age, and I won’t say he was mentally well, but he was a kind and friendly guy. He convinced me one day to sit down at a table with him and draw. He even recommended I take a course called “Drafting 10” which I eventually did take. When I sat down with this guy, it was like I was no longer in the hospital, and when I was able to string together a few good days like that, I was taken to a ward that wasn’t so strict and violent.

So how can people who have a mental illness take this advice and apply it to their lives? First of all, just like I was able to focus (though with great effort) in the violent ward when I was given some encouragement, people with mental illness (and I am sure there are family members of mentally ill people reading this who can encourage their loved ones to do this as well) should be allowed to explore many different endeavours until they find one that they love to do. It could be playing guitar, it could be painting. For me it is writing, poetry, giving talks, even just trying to help some of the many homeless people in my neighbourhood. There are so many things worth doing, if you can just find one thing, perhaps it is something you already have a background in, and then use it in a way that you can become not just a productive person, but a giving person. I once knew a young woman with schizophrenia who became ill a great deal because she never left her apartment. She had trained as an accountant but her skills were fading away and she saw no way to get a job. So, as I will direct many of you, however many read this, I told her to contact an organization called “The Volunteer Network” she did this, and the network (I hope there are similar organizations where you live) placed her in a non-profit business where she was able to work. Unfortunately she didn’t stick with it, but I really think that volunteering can be a source of healing for so many people. There really is a great deal of need for caring, compassionate people, regardless of any mental health diagnosis to simply spend time with elderly people in nursing homes or lodges. At one time I had what was almost a dream job. I worked as a pastoral care volunteer at a Veteran’s Hospital. I met so many kind and caring older men who simply wanted a little company, someone to tell their fascinating stories to. I also helped the Pastor who found four or five men I could visit. I will never forget taking one man out for a walk, and how happy he was to breathe fresh air. To this day, I visit my ex-girlfriend’s mom in the retirement lodge she is in and I love it. She is one of the sweetest, nicest people I know. We get together, eat pizza, play cards, and it really makes me feel worthwhile.

Just to dwell on that word “Worthwhile” for a moment, I should mention that just a couple of years ago I had an amazing job that paid about twice what I get now. If I had stayed with it and carefully saved my money, I could do just about anything, travel all over the globe if I wanted. But it was such a trial dealing with all the politics and competition between me and others. The money was pouring in, but the stress was breaking me down. I found a job with the Schizophrenia Society, which I still have, and I go to many different places and give talks, and there are so many rewards. A couple of weeks ago I met a young man who came to me and told me he thinks he has a mental illness and I was able to help him. Often I go to the Police Recruit Class and teach young officers how to deal with people who are mentally ill. It takes so little effort, but because I love it I do it well, and I have a sense of worth and job security that I don’t ever want to let go of.

Well, dear readers. That is all I really have for today. Soon I will go back to writing poems, I have just been feeling a bit too drained lately. I leave you with a story I want to start adding to my presentations: When I was in Air Crew Survival training as a kid, we were told that we had to pair up with a buddy and watch out for each other. For example, if we were walking and there was rain or puddles, we were told to ask them if they had dry socks. Regardless of their answer, we would have to put our hand into their boots to make sure their socks were dry, and if they weren’t, we would have them change into dry ones. The lesson from this? Find a buddy. Find someone you trust. And when times get hard, check his or her socks. And make sure they are taking care of themselves and that they know to help take care of you.