bipolar recovery

Poverty and the Psychiatric Patient. How Can You Stop It/Break Away From It?

Poverty and the Psychiatric Patient:

 

People with mental illnesses are often plagued by not having enough to get by, and even not taking what little they get to provide their own necessities. There are a few different aspects of this. The first and perhaps the worst part of this is when a psychiatric patient becomes homeless. This is a horrible situation to be in. In my home city of Edmonton, there are a number of ‘characters’ you see on the streets all the time, winter or summer, begging for money, sleeping in bus shelters, filthy clothes and horrible smell to them, often talking to themselves or even being aggressive with people. It is extremely sad to witness because people like this get to this situation after addictions, loss of trust of family members or worse, and loss of government disability benefits. I had some very serious situations occur in my own life when I would get very sick and my delusional thinking made me believe that in reality I owned the place I was renting and had no need to pay rent. As a result of this happening once, I had to go to the hospital, to the locked ward, and I was evicted with no way to state a defence or even be able to move my stuff or clean my apartment. Mental illness (and I like to include addictions with mental illness) can take away everything and leave the sufferer in a terrible state.

I am very grateful about the fact that I have never seen the inside of a prison, but from my understanding, prisons are full of people who should in reality not be punished, but who should be treated for mental illness and be totally forgiven for many of the crimes that got them there. There is another factor in my home city (which gets exceedingly cold in winter) where people face a winter on the streets and actually commit a crime just to get three meals a day and shelter. It costs society, any society, a great deal to put people into the criminal justice system and try them and detain them. It also costs when a person’s needs such as anti-psychotic medications are not available and they get ill. This is just one more small example of why attitudes towards mental illness should change.

After years of patience, as well as experimenting with many different medications, and many hospital visits (one as recent as this past February) I am in an incredibly fortunate position. I have an apartment that suits my needs, I have a part-time job, and I get partial benefits as a disabled person. Without regular visits to the Doctor, proper medication, and a desire to constantly improve my own abilities and well-being, none of this would have been possible. But how can others do this? I hear horror stories about the US and even worse ones about third world countries and how people have such a difficult time getting by. For a long time, perhaps permanently, people with severe psychiatric disabilities are unable to work. There is just too much going on in their heads, too much depression, paranoia, voices, you name it. I am so grateful that most of the time, when I am on my medications, I am very functional. Sometimes you just have to ignore what people say you should be doing (working and paying taxes when you are ill) and focus on doing everything you can to get better.

One of the first things a person really should do I feel is deal with any addictions. When I was a teen, I was a heavy smoker and drinker. It was a coping mechanism, drinking and smoking cigarettes was how I found some comfort in the world. Drinking stopped being fun when it took away the respect others had for me, when I knew it triggered delusional thinking and smoking quickly went out of style when prices went up to $10 a pack. I started out by going to 12-step meetings, although I want to warn people not to make things like that the main focus of your life. It is so important to make your whole life full. I used to have a routine of swimming every day, which I often still do, and often taking long walks with my Dad. When I took things out of my life like booze and cigarettes, and replaced them with healthy activities, it definitely accelerated my recovery. I wish I had also taken the time to join Toastmasters, learning to do more effective public speaking is an incredibly useful tool.

When I was experiencing poverty (I got $560 per month and $300 was for rent, $60 for bills and $200 for food with absolutely no wiggle room) I rode a bike I got second hand, I got a part-time job which was extremely difficult but let me save enough for an old computer. I started to write at this point and I read as much as I possibly could, filling my days up with preparation for the kinds of things I do now. I really feel everyone (though especially anyone who wants to write) should keep a journal. It lets you track your progress over time, and time being one of the few luxuries that recovering psychiatric patients have, it is best to always use it to extend your limits and decrease your limitations every day.

I really wish I could offer hard and fast solutions, but all I can really say is find something at your speed and try to ramp it up a little at a time. I remember a time when I had a horrible depression and got through it by reading a box full of Archie comics I had saved. Even that simple cartoon taught me a lot about humour and storytelling for children. Make the most of each day, make strong, solid friendships, with a few people-you may need to be around a friend all the time but people can’t always be there for you. When I was younger and had a lot of time to read, I would pick up a book that I knew would be entertaining (my favourite book, “Zen and the Art of Motorcycle Maintenance” being the best one) and just randomly read it until I was in more of a mindset to read heavier or even non-fiction books. Like Sylvester Stallone said in Creed, you win the title “One step at a time one punch at a time, one round at a time.” Get the steps and punches down right, because with constant, disciplined effort, even those who are horribly afflicted can make something amazing out of their lives.

Money Management With Severe Mental Illness

 

When I was younger I had a lot of mixed up ideas about money, and they only got worse as I got older and had to take care of myself. I was a bit of a math whiz in school, having taught myself to program my computer to do such things as play games of chance, create graphic designs, calculate mortgages and do my math homework much faster than when I did it without my computer. When I look at this bridge, I think of the old one that was rusting and getting very old, and I get pretty fascinated with the design of it. A friend who is a much better photographer, took a night shot from around this angle and used a long exposure to make the lights of oncoming cars into a streak of white light, and cars going away a red streak. If you break it down, there are so many ways to apply formulas of money to these situations. In our part of Canada, people, or often for young people their families, must purchase their cars themselves. Some of them put a pretty high value on who they are if they have an expensive car like a Corvette or a Mercedes Benz. Granted, they do pay for their car but without the pooled resources of a major city like Edmonton, things like this bridge don’t get built. To relate money to the photographs, although I did get free training in Air Cadets and at school in photography, my hands are tied when it comes to affording a high quality camera, or a vehicle for that matter. Still, this bridge is something I have every right in the world to use because there is no discrimination (supposedly) when it comes to being a have or a have-not. I did experience one thing right on the street I live on. A car pulled up and slowed for a stop sign in front of where I was about to walk, and I stepped out and he almost hit me. He literally had no intention of stopping for a pedestrian, even though he had a stop sign. I pointed at the sign and I forget if I said anything, but then he rolled his window down, and said to me, “We pay for the road, you don’t!” I was left a bit curious as to what he meant. First off, paying or not paying, he has no right to endanger my life. The other thing that was odd was that he should have been pretty sensitive about saying and doing those things because he was obviously an immigrant. Last year I was in a position to buy a new car, something I have never been able to do but decided instead with the advice of my dad, to just keep walking and buy a bus pass each month. I ended up doing so and I have gotten myself into incredible shape and also lost a good deal of weight, something that has done wonders for my confidence, my social life, my fitness and many more things. It has also allowed me the freedom to have a fair amount of extra money here and there. I feel especially proud of the fact that I was able to buy my brother a TV. It is so important for him to have things like this because he has had back surgery and has difficulty getting out of the house.

Now, to get back on topic. I always wonder what readers from the United States or Great Britain will think of my posts because I am extremely fortunate to be a Canadian. I am provided with a disability pension, subsidized housing, discount bus pass, free fitness and swimming facilities, free health care and free medications. I don’t mean to brag about these things, I would like to see every country in the world move towards a situation like this, but that may take some time. As for readers from the US, I know it is extremely difficult to get by when you have to take medications for any reason. One of the things you can do is to write to the company that makes your medication and ask about any subsidy or free medication programs. It may take an Internet search and a few emails, but be persistent. It really is hard enough for people with psychosis or mood disorders to be medication compliant without having the extreme hardship of paying for medication that won’t exactly cheer you up overnight. Medications often seem awful for the first few weeks or even months until your body can adjust to them and then they will begin to deal with your symptoms. If you do have health care and still don’t like taking medications and there is concern you may impulsively stop and have to go into the hospital again, ask your Doctor about injectable medication. I get a shot in the shoulder every two weeks. By some freak chance my Doctor tried to switch me to a more effective, newer medication and it simply did not work for me. I ended up having to spend a month in the hospital. This became a financial burden, but fortunately I have just about gotten myself back to normal physically mentally and financially.

For anyone, especially those who have to pay for medications and work all week, there is a book that I feel could help them all a lot. It is called “The Richest Man in Babylon” and it talks a lot about tried and true, proven, tested concepts on how to get yourself on firm financial footing no matter what your situation. The most important thing talked about in this book is to always take 10% off the top of what you earn and put it away. Do this for a while. Aim for a year or two. While you wait, another thing is that you will need to increase your earnings. Look for classes on things like beading or about jewelry or self improvement classes through the library. Depending on your interests, you could possibly learn how to set up a website like the one you are reading from now. Or, you could make your own jewelry that you can sell at a farmer’s market or flea market. The book focuses on education and self-improvement as a lifelong thing. The next concept the book covers is how to seek advice. One day your mechanic friend may come to you with an idea to buy a stock of encyclopedias that you can re-sell. Don’t listen to him. Listen to your mechanic when he directs you to a deal on a used car in great shape, that’s his field of expertise. Always make sure advice comes from those qualified and experienced to give it. And, the principles in this book emphasize paying down your debt bit by bit, but not cutting into your savings or what you need to live. 20% is a reasonable figure for debt payments. Now, a couple of years have passed. You have some money saved. You paid off your debts. Now is a good time to look into investing, and not on a vacation to Hawaii. You can go to Hawaii all you want when you retire. The next step is to make sure you have adequate insurance for those who depend on you. It may not have to be much if you are older and your children make a good living. The next step is to own your own home. If not a house, maybe a condo. If not a condo, maybe a lot with a trailer that you will pay off. No matter what, you will have to pay for a place to live, why not make this something that will increase your overall equity?

Now, I have given a lot of information here. Maybe some that are close to impossible. I do know that disabled (mentally or physically) Canadian young adults have a program where the Government will match their savings practically 3 to 1 until you turn 49. The only restriction is that it has to stay in savings for ten years. This I feel is a better program than anything. If you qualify when you do your taxes as a disabled person (your Psychiatrist/Doctor must fill this out) then you qualify for this huge potential sum of savings. Honestly, it shouldn’t be passed up.

One of the things that I think about a lot is the situation where someone can’t work at all and have debt. Sadly, sometimes there will be situations where a person with a mental illness needs to declare bankruptcy or even have all their finances given to a public trustee. Both of these things happened to me and not in any way by my own choosing. This is something that often happens in extreme cases. I have seen people who due to depression, ideas of some time soon killing themselves, and many other reasons, simply give away all of their money. Then there is an even worse situation when persons with a mental illness gets credit. I honestly feel most people on a fixed income should not have credit or have a low amount of credit, say less than a thousand dollars. This helps head off scammers who prey on vulnerable people, it also helps in case a person has an episode of mania and overspends. Sometimes it pays to cut up your credit cards and put the pieces in separate garbage collection bins.

Sadly dear readers, it is getting late and I have been writing more than I should. Please message me or email if you want more information or if there is any topic you wish to see on this blog. Have a great long weekend to all my Canadian, British, and Commonwealth friends!

Leif Gregersen, viking3082000@yahoo.com

Mental Health and Stress

Sometimes the sunsets can be so beautiful here in Edmonton, the gateway to the North

 

A Little About Stress and mental illness

In grade 12 I took a course in Law and I got a lot out of it. One of the things that stands out for me is a legal case the textbook quoted where a woman was of a fragile mental state, witnessed a violent car accident, and sued–and won–a case for having a nervous breakdown as a direct result of the negligence of a driver. When I first had severe symptoms though, I knew so very little. Sadly, one of the first things that happens when someone gets sick like I did is that fairly rapidly they lose any material wealth they have and it takes a very long time to get any of it back. What really bothered me was that it seemed people judged me because I was from a nice suburban area and I think they believed I had clothes and money and cigarettes because my parents provided them. All of my teen years were spent working after school or being paid for things around the house and I was proud of what I had accomplished, having owned a nice sports car and a motorcycle I loved to ride. Within a year, every bit of it was gone. What I had left was a comic collection which by today’s standards wouldn’t have been worth much–but they all got stolen anyway.

To get on to the main topic though, when I first was back in Edmonton from living (treatment non-compliant) in Vancouver, I managed to get a job at Safeway. Those were dark days, being deep in depression and never really feeling like myself with the medications I was taking. I had very little knowledge of how to deal with the stress of working and one paycheque I simply walked into a bar and didn’t leave until my money was gone and I was drunk out of my mind. That was another difficult thing for me, no longer being able to drink socially. When I hadn’t been in the hospital and was working I was starting to develop the skills needed to meet and later contact people I had met in bars. But after my pills (which the alcohol worked against) and my loss of faith in myself, I was a sad sight to behold and never really made any close friends or began any relationships in a bar ever.

What did happen though was that one day my Dad started going out of his way to pick me up and take me for walks in the River Valley of Edmonton. I already had a fascination with swimming, and as I built up my stamina and travelled, and found medications that worked better for me, all of my issues seemed to lessen. What I really think had the hugest effect was exercise, or sports for want of a better term. There were times when I had to pull off incredible feats of endurance just to get a little extra money to see me through the month. With a lunch of a spoon, a can opener and a can of beans, I sometimes would have to ride my bike as much as two hours and then work a twelve hour shift and ride two hours back. Often I would come home and be unable to work for a week with the pain in my muscles and sore back.

I hated the fact that I had never been able to hold down a job. I hated more that I had never had a job that required the skills I had built up over a lifetime but instead got labour jobs anyone could do or delivery jobs or security guard jobs. Working security at an old school for a movie set, I made a connection that got me into movie security. I worked my way up to being a stage hand and the money was phenomenal. I also soon learned things about diet and working out with weights and swimming as well as cycling would make me a harder working employee. I managed to last about 7 years at that job and it was a bridge to what I do now, which is to write and to teach.

Doing what I do now feels so amazing, I really feel I am making a difference with the patients I work with and that when I go to give presentations about mental illness I feel that I am helping at least some people view mentally ill people differently. There has even been cases where we have helped people to self identify as having a mental illness and got them the help they needed. My rules are very simple. I don’t work much more than 2 hours a day at most 3 times a week. I do what I can to promote my writing but I also try very hard to live below my means so that I can survive on such limited working hours. When I have a day with nothing to do, I will make up an excuse like taking a two-hour walk to a store far away that has better prices than the stores where I live. I have built myself up, with the aid of a fitness watch, to walk about 5km to the pool where I swim about ten laps, then walk back and I end up having the most peaceful sleeps that I have ever experienced. A young woman who used to lifeguard at the pool I go to once told me that with any illness at all, exercise is the best medicine. I don’t know if this is 100% true, but I do know that feeling fit feels really good, and that people notice when you not only feel good but look good. I seem to get more smiles and winks from single females than when I was young, skinny and 19 years old, full of confidence from being a student pilot. One of the great things about swimming is that you don’t have to do all that much to have great positive effects on weight/fat loss, and muscle tone. You can start out just going to the deep end and treading water for a few minutes. You can work your way up to doing one gentle lap on your back. If you have joint issues or any kind of pain, swimming is as low-impact as you can get. Sadly not everyone has the extreme privilege to do as I do, which is have access for free to all city pools and most weight rooms, but there are options, some are even better. The YMCA will often have a program for low-income individuals to use their pool and their weights and gymnasium. One trick I have learned is to buy very low costing vegetarian protein powder and have a scoop in a fruit smoothie when I finish a workout. Taking protein helps rebuild muscles after a workout and prevents, in many cases, any sore muscles you may experience.

Try it, try just a short walk. Bring your dog or your neighbour’s dog to have company. Buddy up with a friend and walk a little each day, build yourself up to maybe an aquacise class. As you work your way up, focus on bad habits such as too much coffee, too much sugar or smoking. When you start to feel more comfortable, look at getting a part-time job to help fill in the gaps of time in your day and give you a little grocery money. While you are doing this, I not only strongly recommend that you are med-compliant, refrain from any alcohol or drug intake and see your psychiatrist, but also do your best to join a support group or two for your illness or even one that teaches Cognitive Behavioural Therapy. And remember, you are a human being and that means you will make mistakes, or have mistakes in your past, even big ones. But you have full rights to live as healthy and as happy as you can make yourself.

LG

Tall Trees Sown From Seeds of Love and Hate

Please see below today’s photo for a poem and a blog entry

All the fearful years of tears and trials

Wreak havoc upon my thoughts

It seems a test, a trial, a quiz

To even focus upon what I have sought

 

In life we have so little time

As our hours slip into days

I remember holding her like she was mine

then her telling me I was just a phase

 

In death and living there are no words

to slow the march of time

I only long to be understood and heard

to tell them all I have found the perfect crime

 

I do what I can for those I see

show compassion for those in troubled times

and somehow I fool myself that the world cares for me

when they all seem to only want what now is mine

 

I gave away my heart too soon

in a lover’s sweet embrace

now as I work and push a mop and broom

my thoughts occupy a sad, unholy place

 

I no longer dream of God our father

Though he seemed to have done right by me

When my day is done and I close the door

he lets my romantic heart soar free

 

I found a loveliness, a happiness

among the stillness and the peace

and whisper out a tiny prayer

that soon my soul will be released

 

Well, not the most cheerful poem I ever wrote, but I think I am making progress with my writing. I guess I can spill the beans now since the project is almost finished. I am writing a book about my most recent stay in the hospital. I went through a couple of very difficult times, one was the delusional voices I heard, which were extremely convincing, and the other was that I was very paranoid. I had really thought I wasn’t going to have to experience all this again as long as I got rest and took my medications, but there is no insurance policy that covers everything. I still don’t understand why I got so incredibly ill just because of switching from one medication to the next, supposedly newer one. Not a lot was explained. I did have my diagnosis changed once again, this time neglecting to mention my anxiety and adding in my diabetes. I think the Doctor put down schizoaffective disorder bipolar subtype. It’s all pretty confusing. I really want to put this book out to help people to understand more about hospital admissions and how horrible they can be.

What bugs me the most is I like to try and make each of these blogs worthwhile for my readers, but there seems to be no easy answers. I met a man last year who was incredibly kind and diligent about getting help for his son who eventually died by suicide. I have tried to show people how they can get work like I do for the schizophrenia society and feel better about themselves and have some recovery in their lives, but there are many heartbreaking cases I have known, even among people who have worked hard all their lives. I guess I am fairly good at taking care of myself, with the exception of getting into debt too easily. But what do you say to someone who comes up to you and says they have a friend with schizophrenia or they themselves have bipolar and don’t know what to do. All I can really do is keep going to schools and Universities and doing my level best to get a few key points across. Number one, there is no cure, there are only treatments, but they are getting better all the time. Number two, don’t use drugs or alcohol or ski or play football or do anything fun where you might hit your head and get a brain injury. I used to love sports like boxing and football and skiing. I will never forget the first time I went into the hospital and they were doing everything they could for me, hooking me up to million dollar machines and putting me through all kinds of tests to see if my erratic behaviour had to do with a bad fall I had taken on a ski hill in town or not. It seemed once I was deemed mentally ill they sent me to a psychiatric facility to let me rot and I lost all of my opportunities, I wasn’t even allowed to try and finish high school by my parents or the school administrators.

But even in that situation there were good times. There was this moment I was hitch-hiking through the rockies trying to get home to Edmonton in the winter and I was in Hope, British Columbia (it’s where they filmed the first Rambo movie) and the air and the sky and the mountains were all shining silently, singing a chorus of light and beauty that took my breath away. Or this time when I was just entering BC for the first time and I saw a massive Moose and her child running in circles in a flowing field of grass with mountains and cumulonimbus clouds in the background. Those images stayed in my heart. I hate to think what it did to my parents for me, off my medications, with no money or means of earning a living to be wandering all over North America. I lived for the five minute phone call I placed to my parents every night from downtown Vancouver. But when I got back there was no love left for me. No place to stay, no one to do things with. It drove me nuts because I would try and call my sister to talk and each time it was a one-sided lecture to me about how busy she was with school.

But the amazing part of things really is that with time, everything got better. I learned to cook, I found out how to eat healthy and how to lose the weight my medication packed onto me. I even learned to make friends and have some pretty incredible people in my life. It is really kind of funny because in just two years of living on the coast it was like my body had lost its ability to heat itself. The Edmonton winters were just too much. It took a long time, maybe ten years but I adjusted to it and I kept pushing myself to make friends, to read, to write. And somehow the world changed around me and I have an incredibly enviable life now. I think a lot of it just came down to becoming a part of a community and caring for and watching out for the people in my life. That’s about it for today folks, thanks for stopping in.

LG

Hygiene and Mental Illness

The topic of hygiene covers a lot of ground. I wanted to talk about this subject today because I often struggle to keep myself as clean as I like to be while many people tell me I am even cleaner than they are. I know of many cases of people who go for a long time without showering or brushing their teeth and the sad thing is that they pay for this luxury in friendships, job opportunities, and general social interactions. Not too long ago, I was having medication problems and I was experiencing severe paranoia. I believed that people around me thought I stank and that it was so bad they wouldn’t sit near me and they would make jokes and comments. This is yet another aspect of the same issue that plagues people with mental health issues. I can recall being younger and if I was lucky I would take a bath about once a week. Add to the fact that my clothes didn’t get washed often and you have a real problem. In a way, I was afraid of water and taking my clothes off. It may have had to do with the fact that I live in Edmonton where it regularly dips below minus 40 in the winter, but I think there was an actual fear of exposing myself. I had always loved swimming though. Now, thanks to a benevolent government in our city, I am able to get a pass that allows me full access to city swimming pools and gymnasiums. If I am able to swim that is a day I can go without having to shower as they provide hair and body soap for showering before and after a swim. And then, there are times when a shower really does help me get through certain things, like when I am waiting for a long time to do something like meet a friend or get to an appointment. One of the best things about showering I think is that it can be replenishing, refreshing, and even change how you look at the world. Often, when I write a short story, I will go and have a shower so that I can come back and look at the piece from a different point of view after not thinking about it for a while. The benefits of swimming are numerous. If you have ever had a sports injury, swimming is often the best way to exercise with a very low impact on things like joints and knees and ankles and such. It also burns a lot of calories because it exercises many muscles you don’t normally bother with in some workouts like walking or cycling.

One of the things I do to motivate myself to continue my hygiene habits is to try and make them as simple and as enjoyable as possible. I don’t spend too much time in the shower and I no longer take the time to have a bath and have to fill and drain and clean the tub. I jump in the shower, scrub and shampoo and jump out. Then I shave, put on deodorant and quickly brush and floss and use mouthwash and brush my hair. Once you get used to it, it can take under 20 minutes. What I like about it is that I am much more able to feel comfortable around others when I am clean.

Of course, that isn’t the answer for everyone. I had heard of a young man who was diagnosed with Schizophrenia. For some time he didn’t shave and grew a long beard, as well as had a hard time showering. His caregivers were told that the important thing to do was to take all pressure off of him, and eventually he went back to taking better care of himself. There is another factor that the “one in five” who have a mental illness of one type or another often need to take medications which causes dry mouth. Fifteen years ago I had no cavities. I was put on medication that caused dry mouth and now I have no more molars. I have just two good chewing teeth (pre-molars) left to eat with and am putting off getting dentures for as long as I possibly can.

Of course there is also the factor that regardless of the mental illness you are diagnosed with, you can experience depression. I can’t offer any advice for this, and I don’t suggest that even people with lived experience give any advice because I am not (and they are not) psychiatrists. It is so important to be totally honest with your psychiatrist, and if they aren’t helping you, you need to discuss this with another person in the field who can tell you if you might be better off with a Doctor who listens more and is more compassionate. This depression can make you simply not care if your teeth or clothes or body are clean. In this case, forcing yourself to shower and all that may not be the priority, getting your sadness dealt with should be.

Self improvement, which I feel is a cornerstone of recovery from a mental illness, and also something that everyone can benefit from, can take years of work. I can remember in my younger days, for want of a better term, my feet smelled really bad. I dreaded the prospect of being invited into a nice house where you had to remove your shoes and often didn’t in my parent’s home. Years later I learned that you can put anti fungal cream on your feet which is also known as athlete’s foot (and also works well on jock itch) and the smell will completely go away (at least until you walk around in a locker room in bare feet anyway). This changed my whole life, and is a perfect example of how much a person can suffer if they are not open and honest, and fully disclose any issues they have to a Doctor. Well my friends, that is all I have for now. I wish everyone a Happy Easter and the summer of your lives. For those of you who are approaching middle age, I just want to tell you that life only gets better as time passes. Ciao!

The Power of Comparisons To All, But Especially The Mentally Ill

Almost hard to believe this is a single family home, one of the more famous mansions in Edmonton. I often wonder what type of people live in a place like this, and if they are happy. An interesting thing in life is that, at least in my experience, no matter what you may own or what you may have it has little to do with happiness. I am in the fortunate position to have the computer I need to do my writing and a large screen TV to play some of my many video games on. I can focus on what I have, and strive to do better and have more, but the fact is that happiness is almost a chemical reality, something that can be determined by things such as your chemical makeup (brain especially) and even your outlook on life. I am fond of discussing how when I was younger I had no idea what a bagel was. I worked at a donut shop and would serve many people bagels of all kinds. Finally I broke down (and I now love bagels but can’t eat them because of diabetes) and ate a bagel and I recall thinking “This is the worst tasting donut I have ever eaten!” Seems funny now, but it betrays an interesting truth: our expectations and former experiences guide us to appreciate things or react in any of the numerous ways a person can. Me, having been to London and seeing places like Buckingham Palace and the private library of an 18th century King, this mansion looks a bit dinky to me. But if I were to own it I might react in many ways, I might think it was too much space, too wasteful of resources. Or I could be extremely happy that I have a place for my books and a room for friends and a garden I can sit in during the summer. I can actually speak from some experience because I once lived at a friend’s house that was huge. It had 5 bedrooms, two living rooms, two kitchens. My roommate and I each had space for our own office and there was a garage at the back and front of the house. The reality though was that I was miserable. There is so much more to a home and so much more to happiness than square feet. I could cite some reasons why I was miserable in this incredible place, one of them was that it was far away from where I liked to be. There were no nightclubs for people my age, I couldn’t find a good used bookstore nearby or arcade. There was no library. And then there were the factors that really make a home a home, I felt like I was in a massive tomb walking around like a ghost. As mentioned I had a roommate, but he spent so much time watching hockey or playing hockey video games I had no connection to him. He was an incredibly nice guy but I desperately wanted someone to talk to and do things with. I ended up desperately seeking girlfriends and going to dive bars and ended up not only drinking but gambling as well, two things that I absolutely should never do with the mental condition I have.

The story does work out. I moved into an apartment on my own and was able to hold onto a pretty good job for a couple of years. I reconnected with some old friends. I also got put on a drug many people know about, Prozac, which was extremely effective for me. And on top of that I bought a car that was older but in perfect shape for just $75.00. Things could have been better, and I admit, I did eventually get complacent and slipped back into psychosis, but at the time I compared my life to some of the harsher times when there were many people taking advantage of me and when I didn’t have a job or many friends. Having friends is another thing that seems to be so essential. I think now, and for the past couple of years (not counting some time when I had a bad reaction to some medication) I have been having the best time of my life because I have some genuine friends, one who is an incredible young woman who speaks four languages, has a black belt in Tae Kwon Do, as well as a master’s degree and a fantastic job. The other is a guy who is a best selling writer and he is such a great guy he seems to only have interest in helping me move my career as a writer forward. I wish I knew how such amazing opportunities came to me, many of them were random, one in a million chances. If I were still a smoker I don’t think my writer friend would be able to get along that well with me. If I wasn’t a writer who loves philosophy I don’t think the woman with the black belt would have found enough merit in me to let me into her already busy life. Perhaps it came down to what a dear friend at the group home I used to live in told me, when I explained the hours I worked and what I was doing to improve as a writer, as well as doing actual writing, he said, “God will reward you for your hard work.” and it really seems to have come true.

Just as a quick final note, I think on top of friends and a community you feel like you are a part of, for those of us who have mental health issues, it could perhaps be even more important that we maintain diligence with regards to self care and mental health. That means eating right, sleeping enough at the right times, taking medications on time, and of course, being honest with your Doctor. Please reach out or comment if you wanted to say hello or comment.

viking3082000@yahoo.com

Behind Locked Doors When There Was No Crime

This is a picture of me when I was in my early 20s. I think one of the coolest compliments I ever recieved was when I showed it to a female friend and she said, “Wow, you really had the whole Val Kilmer thing going for you back then.” I suppose I had the advantage of good looks for a time, but there was so much going wrong withmy life. I think at the time I still hadn’t been able yet to be completely honest with my Doctor and I had some misconceptions about trusting a psychiatrist to give me the proper meds I needed. When I look at this photo it makes me a bit sad because I see the torn hand me down jeans, the jacket my brother gave me which was the only decent clothing I owned. The orange sweater is one my Dad gave me from his store of clothes. Around this time I was going to adult high school and met a friend who I still talk to to this day, but I have no real clue as to why it lasted this long. When I look at this photo it doesn’t even seem like me.

So, for a bit of irony I will tell you all Dear Readers that as I write this blog entry I am currently a patient on a psychiatric ward. I have been here a month and tomorrow I am going to go home for the weekend and I don’t have a clear idea as to what is waiting for me. All I really do know is that there is a lifetime of books, comics, video games and two places to sleep (along with a ton of frozen meat that I truly hope is still okay) that will be a great deal better than staying here. When I come back from my pass, if all has gone well I will be discharged. One of the odd things about this stay is how sick I was when I came in and how quickly I came back from it all. I did use some of the advice I put on this blog, but I have been very lucky to have incredibly caring and intelligent staff members to help me through, as well as being in a hospital where no expense was spared to make sure the mental, physical and spiritual needs of the patients have been met.

When I came into the hospital, I was in a serious psychosis. I believed that two men from the building I live in had come to kill me and possibly kill my Dad. It was a completely unfounded idea, but I didn’t want to take any chances. I stood my ground until the police, called by my Dad, came to intervene and get me in an ambulance and on to the hospital. Once I saw the police had come I relaxed almost right away and even talked with one of the officers who had seen me speak at his recruit class. But sadly that was where, for a while at least, that I had my last dose of respect from people who were there to help me. I got to the hospital and I thought that everyone was avoiding me and that I stunk horribly so I asked for a gown and a garment bag and went into the bathroom and changed right while I was waiting into a ridiculous piece of hospital clothing that barely covered me. Then, my old enemies anxiety and paranoia surfaced, along with the psychosis (split from reality) that I was experiencing. For a while I really thought I was going to jail though I had done nothing to warrant it.

After incidents I honestly have very little recollection of, I was sent to the hospital where I am now, but not to the quiet and comfortable ward I am on now, I was sent to the locked ward. I can’t even begin to describe how chaotic places like this can be. I did what I could, drank coffee like mad and read until finally I was put over to this ward. There have been some blips, but not a single fight here on the more stable ward, though for a while I still had ideas in my head that someone had a gun and was going to kill me. As I look back in hindsight, there was actually very little animosity. I mostly keep to myself here and try to read and help others when I can. I have to admit to a healthy bit of fear of some of the others, but as I adjusted even those fears dissolved.

I am wondering what tomorrow will bring. How I will cope with the shock of being home. When I went home the other day on a day pass, it seemed that the building was going downhill. For a while I had thought my only solution was to forget about my apartment and head to BC. After a visit and a talk with my building manager, I really don’t think that will be needed. I just really can’t wait to sleep as long as I want, drink tea when I want and not have to report in to anyone.

What Really Changes in Someone When They Have a Mental Illness?

First of all, in the more serious and chronic types of mental illness, when the more obvious symptoms begin to appear, there has more than likely been personality and other issues going on for a long time. I know in my own case, severe depression had existed as far back as the second grade, and kept on getting worse until other symptoms, like psychosis began to surface. When they did, the fact that my condition had been left untreated for so long, compounded the effect of the mental collapse that had me end up in a psychiatric hospital.

As I have been learning in my experience with the Schizophrenia Society, there are different symptoms that appear in different stages of the illness. Quite often this makes an accurate diagnosis next to impossible until a good deal of time has gone past. Schizophrenia begins with symptoms like depression and withdrawal from society and later the more ‘classic’ symptoms like hallucinations and delusions present themselves.

I feel the most important thing that someone can do when they begin to experience any kind of symptom is to seek assessment and possible treatment. If a major disorder is discovered, more than likely (but not in all cases) medication will be prescribed. It is incredibly important that this medication be taken as prescribed and not discontinued without supervision from a professional. At the age of 14 I was given meds and never took them. I often wonder how my life may have turned out if I had continued to take them. The bad news is that medications don’t work right away and can often have debilitating side effects. The good news is that medications are getting better all the time and also that your body will adapt to what you are taking and you will learn to manage the risks versus the benefits.

That is certainly not a comprehensive guide to medications, but I am hoping it may be a few helpful words. The other post-diagnosis problem is that people who have mental illnesses face things like stigma from others, and self-stigma. I know that I was so ashamed to have a mental illness that I left the home town I dearly loved and all of my friends hoping to start over. I often say the problem was that I brought my brain with me. I went to the coast, Vancouver, and made plans to join the military. For a while I had the time of my life. New people, new sights and sounds, places to see that I had no concept of. But I got sick again. I just couldn’t admit to myself (with the barrier of stigma and self-stigma) that I needed any kind of help. And not even my loved ones could do anything but worry while all this went on.

The fact remains though that I returned to Edmonton, sought treatment, finished school, started to write, and built a life for myself. When I am taking my medication properly and it is working properly, often even mental health professionals would not assume I have three major diagnoses. My bipolar is controlled by a mood stabilizer-rarely do I stay up all night or talk so much I drive people away. My psychosis is controlled with a time-release injection which keeps my thoughts firmly rooted in reality. And my severe depressions are also taken care of by an anti-depressant. Am I just like the person I was before the diagnosis and the pills? Maybe not, but I think in many ways I am a better person.

If you have doubts regarding your mental health:

-Seek help, even if it is just from an MD

-Get an assessment done. Find out what is wrong

-Work with your doctor and pharmacist to find medications that will help

-Give the medications time to work

-Find and work with a therapist who just may be able to make you feel better about some of the underlying problems that hold you back in your life

-Enjoy your life.

When Psychosis Causes Hallucinations Which Causes More Psychosis

 

So here I am, 17 years into recovery from a lengthy hospital stay for acute psychosis. In that time, I have mostly been on an injectable medication every two weeks, and it has done a really good job of keeping my head straight. Now, a new medication or two has been developed, and supposedly they are better. One of the advantages is that the new ones only have to be administered once a month rather than every two weeks. So, after a lengthy debate/discussion, my Psychiatrist puts me on one of the new ones (I don’t think it would benefit anyone to know the name of it so I am going to leave it out). But the difficult thing is that it seems I have been taking the previous medication for so long, then when it was stopped, I have been having symptoms of severe schizophrenia, something that hasn’t happened before. The world is a scary place with schizophrenia in it to confuse a person already struck down with bipolar and anxiety. It is a very hard thing to explain to anyone who hasn’t experienced it. When the worst happens is almost always in a public place, often a restaurant or shopping mall. I start off feeling fine, and then I get quiet and begin to listen to people talking around me. This is something I used to do in my late teens when I lived in Vancouver. I hadn’t yet perfected my set of social skills, and I would listen in on people and then, though trying not to be rude, I would join in on what they were talking about. I often gave the excuse I was from a small town, but that was pretty much a lie. Still, I met a lot of people, had friends nearly wherever I went, and often count those times as some of the best ones in my life. Now, that habit I formed, for lack of a better term, torments me to no end. I sit, and there is a cacophony of voices and noise, then I begin to tune in on a specific conversation or sound, and it slowly starts to turn into words and sentences I seem to recognize. If I am unlucky, which has happened a few times in the past weeks, I interpret what was said as a direct threat and suddenly have a very strong desire to leave, whether I have to eat or sit with someone or any reason really. This is when I start to look and feel disturbed (I think) and at that point, I honestly feel that some people can sense my anguish. Then one of them may make a comment or a joke and if I overhear it, or misinterpret it, then I start to feel justified that people are plotting against me and things get worse. This has been my world since Christmas Day when I laid in my bed not wanting to make a sound, listening to the heater/radiator in my bedroom start to sound like two men plotting my demise in the stairwell. It is hard to explain how destructive this psychosis can be. I met a friend at a restaurant a couple of weeks ago and as the meal wore on, I keep trying to not let people see me, couldn’t look the person I met with in the eyes, and my voice kept on getting quieter. I have been trying to take steps to deal with it, but I fear it will take time and extreme effort. One of the ways my nurse/therapist was helping me to learn was taking deep breaths, holding them for a couple of seconds and then slowly releasing them, causing you to get beyond the “fight or flight” mode and also distracting you from any false voices. But she was also careful to caution me that there is really no magic pill that will end my auditory hallucinations. One of the things that I think could be an issue is that I have been playing a number of violent video games which I have stopped, but still kind of long to play. One of the best suggestions came from my Dad, who saw my Mom go through this for a long time. He suggested that I simply put some music on an iPod or iPhone and focus on the music rather than the troubling talk. I hope some of this helps people out there who may be experiencing psychosis, as always, please feel free to comment or contact me.

Mental Health Crisis and Severe Breakdown Advice

A nice frosty December photo from my trusty iPhone 7.

Well, the past couple of days have been extremely difficult ones, I have spent a lot of time hiding in my bed not wanting to face the world. One of the cool things that I did do was head out to North Edmonton to meet with a young woman who needed help with her writing. I know I am suited for the smaller creative writing classes I teach, but now that I am doing more mentoring I feel one day I may be able to take on a job like my good friend Richard Van Camp does often, which is being a writer in residence at a library or University. In a job like this, you spend half of your time working on your own project, and the other half helping the general public with writing they want help with.

So what I most wanted to do was to put into words what has been going through my head these past few days. I don’t know if many people understand totally what schizophrenia does to a person, but I will try and relate it. Usually when I have an episode, it means something has set it off. When I first got sick, there were many tests done to make sure there wasn’t other things happening to make my behaviour so extremely weird for lack of a better term. They took drug tests, thyroid tests, cat scans. When all came back negative they were ready to diagnose me but the odd thing was that they didn’t seem ready to tell me what this diagnosis was. I had a lot of problems, delusions being the worst of them. I was also experiencing the mania side of bipolar disorder, not eating, working out a mile a minute and staying up all night reading. It didn’t help that there was a lot of pressure at home and at school, as well as the night shift job I was working.

Slowly, over time, I slipped further and further away from reality. I began to think that if I just kept trying harder and harder at doing everything perfectly, things would go well. I took a trip to a mountain resort with family and friends and that perhaps was where everything was falling apart. It is hard to explain, but I was hugely taken advantage of by my sister’s boyfriend who used subtle and not so subtle persuasion to cause me to ruin the engine on my car, spend all the money I had on the trip and other things, and he had also filled me so far up with his garbage political ideas that he himself didn’t practise that I even saw my own father who put. a roof over my head as a terrible, messed up person. It really doesn’t help to blame anyone truthfully, but a lot of my confusion and utter inability to continue to work and function was due to this despicable character.

Somehow, it seemed to me as these things were happening, and I can’t blame them all on my sister’s boyfriend because they happened to other family members as well, that all the things that had been impressed on me about hard work and discipline gave way to me thinking I could get away with quitting my job (which I did by simply walking off in the middle of a shift) and taking my focus away from providing for needs such as money for an apartment so I could move out of the house. I began to believe strange things, like if I wanted something I could just go into a store and take it and not pay for it and that 99% of the rest of the population got through life this way. A whole new reality formed in my mind, new delusions coming by the second. One of them was that there was no such thing as marriage and commitment, that I could somehow sleep with any woman I wanted, I just had to go to a nightclub or dance and start a one-night-stand. This was another delusion that had roots in things my sister’s boyfriend had told me. Before this, I was a strong believer in no sex before marriage or outside of marriage and was pretty much dead set against abortions. I am so glad my sister eventually got free of this guy. He did have some positive qualities to him, he was funny and fun to be around, he also was influential in my sister eventually earning a master’s degree in education. But if she hadn’t left him and married I often wonder if my beautiful, wonderful niece would ever have been born.

So all of these delusions crept up on me. One of the more prominent ones was that police were some kind of different species of human being and that, along with some of my other warped beliefs that would get me into trouble with the law, that jail and getting arrested was considered almost heroic. It all boiled down to one morning when I went to gym class and just a few minutes into my class I picked a fight that I have regretted nearly every day of my life since. I left the ice rink with my teacher, went to the office and was arrested and taken away in front of all of my peers. This, which at the time seemed like it was a positive thing, was the most damaging walk of shame I have ever experienced.

I was taken at that point to the Psychiatric Hospital and though I have often talked about it being a dirty, violent and extremely disturbing place, the reality of it was that in a very short time this place got ┬áme better, got my thoughts in order. It is so weird to think of all the delusions I had, from being ridiculously rich to having the prettiest girls in my school secretly in love with me back to seeing the world through totally rational eyes, then months later these delusions would slowly come back if I wasn’t still taking my medication. Until it happened a number of times, I didn’t realize how when I started to accumulate millions of dollars and the TV was talking to me directly that it wasn’t something the medication and the “evil” doctors were doing to me. When it actually occurred to me, during a time of clarity, that it was so much better to have sane thoughts despite the difficult side effects of psychiatric medication, which ranged from serious tiredness and grogginess to drooling and making my hands shake, my life truly began to turn around. 17 years hospital free!

I wanted to talk now a bit about the symptoms I have been experiencing in the past few days, but I don’t want to write a blog so long no one will read it. I will do my best to write about more up to date mental health issues in the blog to follow. Thanks Dear Readers, and Happy New Year!